re epstein barr syndrome questions in article apr reed edu jcherney reed edu writes okay this is a long shot my friend robin has recurring bouts of mononucleosis type symptoms very regularly this has been going on for a number of years she s seen a number of doctors six was the last count i think most of them have said either you have mono or you re full of it there s nothing wrong with you one has admitted to having no idea what was wrong with her and one has claimed that it is epstein barr syndrome now what she told me about ebs is that very few doctors even believe that it exists obviously this has been her experience so what s the story is it real does the medical profession believe it to be real has anyone had success is treating ebs or is it just something to live with thanks for your assistance outbreaks of a chronic mono like entity were originally called ebs or some variant thereof because most of the people with this disease had elevated levels of antibodies to the ebv virus but not all of them did which prompted an official renaming of the disease to chronic fatigue syndrome this renaming took place in the annals of internal medicine jan i believe now it s also called chronic fatigue and immune dysfunction syndrome cfids since it seems clear that some sort of immune disregulation is causing the probs astonishly there are still docs who tell people with massively swollen glands recurrent fevers and nightsweats etc that there s nothing wrong with them this is not the same thing as saying that the syndrome may have a at least partly psychological cause the disagreement among people whose thoughts are worth considering centers on just what the cause is no one knows but theories include psychological stress some sort of virus a retrovirus say most maybe one of the newly discovered herpes viruses environmental toxins bacteria and yes candida genes and or some combo of these there s no outright cure at the moment but different docs try different things some of which seem to help massive amounts of info on the condition are available these days post your q to alt med cfs and you will be flooded w facts note there are lots of far better understood and better treatable diseases that look like cfids make sure these get ruled out by a good doc
