text: Five-month-old Elijah is 'the happiest baby ever', according to his mother. He loves everything that moves, especially seeing people and exploring new places. But doctors say he probably won't live to see his second birthday because of a fatal genetic illness. His heartbroken mum Jessica and dad Andrew McCrae have pledged to do everything they can to make sure the little boy from Penrith, in Sydney's west, lives a full life, compiling a 30-item bucket list for their son to complete before he passes away. From a road trip to Queensland to watching the sunrise and set with him, Jessica told Daily Mail Australia the family are planning to show Elijah as much of the world as they can in his final days. Little Elijah suffers the fatal genetic disease Type 1 Spinal Muscular Atrophy (SMA). Born strong, he's now 'very floppy', and doctors say he will probably not survive his second birthday . ‘His sweet face will always know how to bring a smile to my face, even long after he has left us,' his mum Jessica McCrae said . First item on the bucket list: LIttle Ellijah got to visit the Sydney Royal Easter Show at the weekend and meet all of the animals . Fun times: Dad Andrew cradles his little boy . 'Just because he can't move his body doesn't mean he can't enjoy life any other way, like the rest of us can,' his mum told Daily Mail Australia. Little Elijah suffers from Type 1 Spinal Muscular Atrophy (SMA). He gets weaker as he grows older. Born strong, he's now 'very floppy'. His parents were devastated when he was diagnosed. They are refusing to wallow in their sadness. 'You can sit there and be depressed about it, or say, "he's here for two years, we've got to make the most of it,' Jessica said. The parents were motivated to start the list - which includes visiting Sydney's aquarium and Opera House - by their love for their son, and heartbreak at seeing other happy families having fun with their grown children. 'I thought, "let's make a bucket list. 'I've got my own - like travelling the world - but (Elijah) won't ever be able to do things like that. 'So why don't we do things we would do with a child when we're older?' The family have already ticked one item off the line-up. They visited the Sydney Royal Easter Show at the weekend. It's the Easter Show! Dad Andrew and mum Jessica are pictured with their baby boy out the front of all the rides at the Easter Show last weekend . Look at those goats! Little Elijah is pictured with some of his furry friends. His parents are hoping to take him to Sydney Wildlife World and Featherdale Wildlife Park as well . 'We have to enjoy it now. We don't get to see him enjoy these things when he's like 10, we have to do it now' Little Elijah was fascinated by all the 'shiny stores' and loved looking at the cakes, his mum said. And in the coming weeks, they are hoping to head out on a road trip to Queensland, stopping along the way at various sights, including Byron Bay, the theme parks on the Gold Coast and The Entrance, on the Central Coast of New South Wales. 'The hardest thing is seeing other families, especially when you go out and see these families having fun,' Jessica said. 'We have to enjoy it now. We don't get to see him enjoy these things when he's like 10, we have to do it now.' 'The hardest thing is seeing other families, especially when you go out and see these families having fun,' Jessica said . Elijah was born very strong but has lost a lot of muscle because of his condition. ''It breaks you, to see your baby get so weak,' his mum said . The family have made a fundraising page in the hope they can raise the money to complete the list together. But the item they want the most is to celebrate Elijah's first birthday with a big party. 'I want him to celebrate his 21st birthday,' she wrote on Facebook, 'but I'm being realistic'. There is hope that Elijah may survive longer than the doctors have predicted. Elijah has been approved to go into a clinical trial which will hopefully prolong the little boy’s life. 1. Trip to New Zealand . 2. The Gold Coast . 3. Experience Movie World . 4. See Sea World . 5. Visit Australia Zoo . 6. Go to Wollongong.. 7. An adventure to Forster . 8. See Palm Beach . 9. Take a peek at The Entrance . 10. Go to Coffs Harbour . 11. Swing by Byron Bay . 12. Attend the Sydney Aquarium . 13. See the creatures at Sydney Wildlife Park . 14. Pat the animals at Featherdale Wildlife Park . 15. Paddle at Manly/Bondi Beach . 16. See the Opera House . 17. Visit Darling Harbour . 18. Be dazzled by the Vivid Light Festival . 19. Take him on a ferry . 20. Watch the sunset and sunrise . 21. Visit The Three Sisters/Blue Mountains . 22. Go to Mt Tomah ('a taste of Scotland') 23. Attend the Bundanoon Highland Gathering . 24. Have a family photoshoot . 25. Celebrate his 6th months on Earth with a party . 26. Dedicate him to God . 26. Host a 1st birthday party . 27. Go to the Easter Show (done) 28. Head to a museum . 29. Visit the look-a-likes at Madame Tussauds . Of two groups in the trial, one will receive a drug, while the other must undergo an invasive ‘sham surgery’. ‘Praying hard he will get the drug and not the sham,’ his mother wrote on Facebook. The treatment Elijah will receive will be randomly selected by a computer. No one, bar a few selected people, will know as his mother is not allowed to accompany her baby during the procedure. ‘Words cannot describe the anxiety, the emotions I am feeling. The first wish listed on Elijah's bucket list is to visit New Zealand with his parents (above, Paparoa National Park on New Zealand's South Island) Number three on Elijah's bucket list is to see Queensland's iconic family theme park Sea World . Visiting Australia Zoo is number five on Elijah's bucket list, where one of the highlights is visiting the koalas . 'It's all hitting me harder than ever now. Especially because if he gets the drug it might prolong his life. ‘If not, then we will lose him soon. It kind of feels like it is his "d-day". ''It breaks you, to see your baby get so weak.' But she knows Elijah will always be with them. Jessica wrote on Facebook: '(His) sweet face will always know how to bring a smile to my face, even long after he has left us.' Seeing the Opera House is number 16 on Elijah's bucket list, a landmark made famous by it's white sails .
target: Five-month-old Elijah's parents have made him a bucket list .
  Mum Jessica and dad Andrew want him to see the world .
  Little Elijah suffers the fatal genetic disease Type 1 Spinal Muscular Atrophy .
  He was born strong but he is now 'very floppy' and getting weaker .
  The list includes a trip to Queensland, a ferry ride and watching the sunset .
  'The hardest thing is seeing other happy families'