text: A five-month-old baby whose parents created a 30-item 'bucket list' for their  terminally ill son has tragically died - with sadly only one item ticked off. Elijah McCrae's heartbroken parents, Jessica and Andrew, remembered the 'happiest baby ever', after he died in his mother's arms on Monday evening. 'We thought we had at least another week,' Ms McCrae said. 'It is with a heavy heart, that our baby Elijah has passed away. He passed peacefully in my arms. They tried to revive him but we knew he was telling us it's his time.' 'We thought we had at least another week,' Ms McCrae said. 'It is with a heavy heart, that our baby Elijah has passed away. He passed peacefully in my arms' In a series of heartbreaking posts, Ms McCrae documented the gut-wrenching final stages of their beloved son's fight for life. 'I'd rather death happen suddenly than have to grieve the impending death of my child then grieve again when he dies,' she posted on April 17. 'I became so overwhelmed at knowing that one day I will be in the house without him in this world.' On the morning of April 19, the parents were overwhelmed by love and hope, and shared a picture of Elijah in his hospital bed. 'He is full of smiles - love this kid,' it read. 'Tomorrow we discuss Elijah's end of life care in a multidisciplinary meeting. And hopefully we can then go home within a few days.' That hope was replaced by fear later in the day, when Elijah took a turn for the worse. 'About an hour and a half ago I saw Elijah stop breathing,' she posted about 8pm on April 19. Little Elijah suffered with the fatal genetic disease Type 1 Spinal Muscular Atrophy (SMA). He was born strong, before becoming 'very floppy' ‘His sweet face will always know how to bring a smile to my face, even long after he has left us,' his mum Jessica McCrae said . 'He was white and he closed his eyes. This was the first time I saw him like that. 'He is incredibly weak and we are now wondering what it all means. This means that we will most likely never be going home. I fainted when I saw his chest stop rising and falling. Amid the unimaginable dread, his parents were given a moment of immense happiness, when their baby Elijah began 'smiling like nothing happened' after the scare. Hours later, Elijah died in his mother's loving arms. The first item ticked off Ellijah's list was a trip to  the Sydney Royal Easter Show so he could meet all of the animals . Andrew, Jessica and Elijah had a day out  at the Easter Show earlier this month . Elijah is pictured with some of his furry friends. His parents had hoped to take him to Sydney Wildlife World and Featherdale Wildlife Park as well . His parents created the to-do list after he was diagnosed with a genetic illness that meant he would likely not live to see his second birthday. Elijah suffered from Type 1 Spinal Muscular Atrophy (SMA), which saw him get weaker as he got older. The family, from Penrith in Sydney's west, were able to visit the Sydney Royal Easter Show - ticking off one of the items on the bucket list. The list included plans to take a road trip to Queensland to watching the sunrise, and visits to Sydney's aquarium and Opera House, Ms McCrae told Daily Mail Australia. 'Just because he can't move his body doesn't mean he can't enjoy life any other way, like the rest of us can,' she said. Andrew McCrae cradles his little boy . Born strong, he became 'very floppy'. His parents were devastated when he was diagnosed. They created the list in an effort to avoid wallowing in the sadness of the shocking situation. 'You can sit there and be depressed about it, or say, "he's here for two years, we've got to make the most of it,' Jessica said. They created the list out of their love for their son, and heartbreak at seeing other happy families having fun with their grown children. 'I thought, "let's make a bucket list. 'I've got my own - like travelling the world - but (Elijah) won't ever be able to do things like that. 'So why don't we do things we would do with a child when we're older? 'The hardest thing is seeing other families, especially when you go out and see these families having fun,' Jessica said. 'We have to enjoy it now. We don't get to see him enjoy these things when he's like 10, we have to do it now.' The family had made a fundraising page in the hope they could use the money to complete the list together. But the item they want the most is to celebrate Elijah's first birthday with a big party, and had hoped he would make it to that milestone. 'We have to enjoy it now. We don't get to see him enjoy these things when he's like 10, we have to do it now' 'The hardest thing is seeing other families, especially when you go out and see these families having fun,' Jessica said . Elijah was born very strong but has lost a lot of muscle because of his condition. ''It breaks you, to see your baby get so weak,' his mum said . 1. Trip to New Zealand . 2. The Gold Coast . 3. Experience Movie World . 4. See Sea World . 5. Visit Australia Zoo . 6. Go to Wollongong.. 7. An adventure to Forster . 8. See Palm Beach . 9. Take a peek at The Entrance . 10. Go to Coffs Harbour . 11. Swing by Byron Bay . 12. Attend the Sydney Aquarium . 13. See the creatures at Sydney Wildlife Park . 14. Pat the animals at Featherdale Wildlife Park . 15. Paddle at Manly/Bondi Beach . 16. See the Opera House . 17. Visit Darling Harbour . 18. Be dazzled by the Vivid Light Festival . 19. Take him on a ferry . 20. Watch the sunset and sunrise . 21. Visit The Three Sisters/Blue Mountains . 22. Go to Mt Tomah ('a taste of Scotland') 23. Attend the Bundanoon Highland Gathering . 24. Have a family photoshoot . 25. Celebrate his 6th months on Earth with a party . 26. Dedicate him to God . 26. Host a 1st birthday party . 27. Go to the Easter Show (done) 28. Head to a museum . 29. Visit the look-a-likes at Madame Tussauds .
target: Five-month-old Elijah McCrae's parents made a bucket list for their son .
  Baby Elijah tragically died with only one item ticked off on the list .
  His parents, Jessica Andrew, wanted to show their son the world .
  Little Elijah had the fatal genetic disease Type 1 Spinal Muscular Atrophy .
  The list included a trip to Queensland, a ferry ride and watching the sunset .