Coats' disease was first identified by Scottish opthalmologist
George Coats in 1908. For a brief biography of Dr. Coats, here
is a link: In June of 2005, our 3 year old son Jacob was
diagnosed with Late Stage 4 Coats' Disease. He will not regain
the vision in his right eye with the treatments available today.
We started this website with the hopes of providing information
for parents who are just learning about Coats' Disease. We also
wanted to provide a forum for parents to share their stories, to
ask their questions, and get support from some of the amazing
parents that post on our message board. It is our sincere hope
that you find some answers to your questions here, and we would
love to hear from you. It is now April of 2010, and Jacob is
doing great. He still has his Coats' eye, although it is
completely covered with a cataract. Removing the cataract would
only be for cosmetic purposes, so we will leave it for now.
Jacob is a completely normal 7 year old boy (almost 8!). He is
doing great in school, and