An Exploratory Study of the Use of Five Wishes as a Tool for
Advanced Care Planning in Young Adults With Metastatic,
Recurrent, or Progressive Cancer or HIV Infection - Few
resources exist for helping adolescents and young adults with
cancer or HIV disease understand their changing physical,
emotional and social needs when treatment is no longer
effective. - An advance directive document called Five Wishes
has had particular success with the adult population because of
the consideration of personal, emotional and spiritual needs in
addition to medical and legal concerns. -To learn which
questions in Five Wishes are useful for adolescents and young
adults and to then create a new document that reflects the
issues they feel are most appropriate for people with cancer or
HIV disease. -Adolescents and young adults 16 to 30 years of age
with advanced cancer or HIV disease acquired perinatally or
early in life and enrolled in an active NIH treatment protocol.
- Stage 1: Participants go through each question in Five