PLANNING FOR SCHOOL Advocate for your child in the classroom
Children and teenagers who have pulmonary hypertension face a
variety of challenges related to their illness. They often miss
school because of doctors’ appointments, PH symptoms and side
effects due to medications. Frequent absences can cause a major
disruption in a child’s learning. In addition, student patients
sometimes have physical difficulties negotiating their school
environment. Families of children with chronic illnesses can get
help through their schools to maximize their child’s education.
Parents should familiarize themselves with the Individuals with
Disabilities Education Act (IDEA) and their state's policies and
procedures for assisting students with disabilities. Depending
on your child’s needs, an Individualized Education Plan (IEP) or
504 Plan allows you to put your child’s needs and your
expectations of school personnel in writing.