Rare Disease Day is February 28 [Infographic] Millions of
Americans will join others around the world this month in
observing Rare Disease Day (February 28). They hope to help draw
attention to rare diseases and the unique challenges faced by
the nearly 30 million Americans affected by them. Because of the
rarity of their conditions, patients are often challenged to
find information, knowledgeable doctors and support for their
condition. One such disease is Cryopyrin-Associated Periodic
Syndromes (CAPS) – a serious, lifelong autoinflammatory disease
that affects about one in one million people in the United
States. Because there are so few CAPS patients, online resources
play an important role in uniting the community.
CAPSConnectsUs.com, a new educational website from Novartis
Pharmaceuticals Corporation, enables CAPS patients in the United
States to connect online to share their stories, encouragement
and advice about managing daily challenges.