Marfan syndrome is a progressive genetic disorder that affects
the body's connective tissue. Connective tissue is everywhere in
the body, providing structure and support for cells. Think of it
as a sort of "glue" that helps support every organ, blood
vessel, bone, joint, and muscle. In people with Marfan syndrome,
this "glue" is weaker than normal because of a defect in the
body's production of the protein fibrillin, a major component of
connective tissue. Weakened connective tissue can lead to
problems in many parts of the body, especially the heart, eyes,
and bones. Even though the disease has no cure, the good news is
that doctors can successfully treat just about all of its
symptoms. Just a few decades ago, most people with Marfan
syndrome didn't live past 40. Now, thanks to new research and
treatments, those who are diagnosed early and get good medical
care have just about the same lifespan as everyone else. Current
research on a group of medications called ACE inhibitors appears
extremely promising and