Utilizing Oncology Related Social Media Content to Model Information Seeking Behaviors Towards a Model of Shared Decision Making
The Internet has made it effortless to find advice, opinions, support, and information. Social media plays a supporting role by transferring such content between people, companies, doctors, and other actors instantly. When it comes to cancer diagnoses, researchers do not know who looks for what types of information and interactions on which websites, and how social media impacts different people. How people educate themselves on cancer and the level of cancer literacy (understanding of the diagnosis and treatment) is critical to support equality of treatment success. Understanding the internet pathways that patients and their caregivers follow when searching for information about cancer, and how doctors use or don't use social media, is important for being able to make sure that everyone has equal access to reliable information at the right time in the right way. This work in progress attempts to understand how stakeholders use social media in oncology decision making and presents the outline of a decision support service for shared decision making.
2020 IEEE 33rd International Symposium on Computer Based Medical Systems (CBMS)