Julian Schwarz, Eva Meier-Diedrich, Katharina Neumann, Martin Heinze, Yvonne Eisenmann, Samuel Thoma
Reasons for Acceptance or Rejection of Online Record Access Among Patients Affected by a Severe Mental Illness: Mixed Methods Study
JMIR mental health
blind deaf individuals comprise large populations often experience health disparities marginalized gender racial ethnic lowsocioeconomic communities commonly experiencing compounded health inequities including populations precision medicine research critical scientific benefits accrue assessed representation blind deaf people us research program aourp 20182023 cohort participants provided electronic health records compared centers disease control prevention 2018 national estimates key demographic characteristics intersections thereof blind deaf aourp participants considerably underrepresented cohort especially among workingage adults younger age 65 years well asian multiracial participants analyses show compounded underrepresentation intersection multiple marginalization racial ethnic minoritized group female sex low education low income substantively workingage blind participants identifying black african american female education levels lower high school representing onefifth national prevalence underrepresentation raises concerns generalizability findings studies use data limited benefits already underserved blind deaf populations