Mohit Prabhushankar, Ghassan AlRegib
Stochastic surprisal: An inferential measurement of free energy in neural networks
Frontiers in neuroscience
parkinsons disease pd complex neurodegenerative disease resulting wide range motor nonmotor symptoms treatment regimen often complex people parkinsons pwp spend time daily selfcare practices including selftracking signs symptoms seeking diseasespecific knowledge research suggests selfcare interventions yield promising care health outputs pwp yet research focuses provider perspective rather conducting selfcare study explores meaning selfcare diseasespecific knowledge selftracking perspective pwp sweden qualitative data three data sets analyzed compared using qualitative content analysis one focus group selfcare n 14 one freetext survey diseasespecific knowledge n 197 one freetext survey selftracking n 33 analysis resulted three categories illnessrelated tasks internal resources external resources illnessrelated tasks describe various tasks pwp carry selfcare including lifestyle choices treatments selftracking internal resources include personal knowledgeskills well mindsets could facilitate challenge completing tasks finally external resources include pwp literature clinicians sources diseasespecific knowledge selfcare found fluctuate beneficial burdensome depending resources conclusion selfcare needs acknowledged discussed often pd complex conditions future selfcare interventions consider selftracking diseasespecific knowledge well internal external resources design implementation researcher pd actively involved phases research study design data collection analysis preparing manuscript