Angela L. Jefferson|Susan Lambe|Christine E. Chaisson|Joseph Palmisano|Kathy J. Horvath|Jason Karlawish
Clinical Research Participation among Aging Adults Enrolled in an Alzheimer's Disease Center Research Registry
Boston University|Boston University|University of Massachusetts Boston|Boston University|Boston University|Boston University|Edith Nourse Rogers Memorial Veterans Hospital|University of Pennsylvania
light limited understanding motivates older adults participate clinical studies alzheimers disease ad current study examines incentives barriers participating ad clinical research among older adults 235 participants enrolled boston university alzheimers disease center research registry 75 8 years range 5899 years 60 female longitudinal registry individuals recruited clinical studies completed survey assessing registry participation satisfaction religiousness trust healthcare institutions medical research attitudes participants reported initially enrolling registry societal benefit insufficient time commonly endorsed barrier enrolling centerapproved studies particularly among younger participants driving lack transportation medical facility also barriers particularly older participants transportation popular incentive followed homebased visits particularly older participants participants less formal education compensation particularly among respondents racialethnic minority groups participation interest studies associated favorable medical research attitudes r 034 p 000003 religiousness r 009 p 021 trust healthcare institutions r 009 p 017 among older adults societal benefit motivating factor registry enrollment however participation additional studies hindered insufficient time among younger participants transportation barriers among older participants providing transportation homebased visits modest compensation may improve participation rates furthermore favorable attitudes toward medical research strongly associated interest enrolling additional studies may serve beneficial outreach triage technique