Kristina Zalud, Griffin Collins, Justin N Baker, Jennifer W Mack, Erica C Kaye
Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
mortality rate intensive care units icus notably high patients often relying surrogates critical medical decisions due compromised state paper provides comprehensive overview ehealth challenges applying ehealth tools including economic disparities information inaccuracies addressed study introduces ehealth literacy assessment tools evaluate users capability literacy levels using ehealth resources clinical scenario involving surrogate decisionmaking presented simulated case involves patient hemorrhagic stroke lost consciousness requires medical procedures tracheostomy however due medical surrogates lack familiarity ehealth devices limited literacy using ehealth resources difficulties arise assisting patient making medical decisions scenario highlights challenges related ehealth literacy solution strategies proposed conclusion effective icu decisionmaking ehealth tools requires careful balance efficiency inclusivity tailoring communication strategies providing diverse materials essential effective ehealth decision resources icu setting health professionals adopt patientcentered approach enhance decisionmaking experience particularly individuals limited ehealth literacy