Rakhshan Kamran, Liam Jackman, Charlie Goodwin, Anna Laws, Melissa Stepney, Conrad Harrison, Abhilash Jain, Jeremy Rodrigues
Implementing strategies to improve uptake of patient-reported outcome measures (PROMs) in gender-affirming care: a mixed-methods implementation study
BMJ open quality
background health literacy may influence transition pediatric care adult care adolescents sickle cell disease scd postulated one influencing factor health literacy adolescents scd healthseeking behavior purpose study twofold 1 explore healthseeking behaviors adolescents scd 2 determine significant differences health literacy levels adolescents scd based upon healthseeking behaviors methods crosssectional descriptive study evaluating healthseeking behaviors health literacy 110 black nonhispanic adolescents scd convenience sampling utilized recruitment inclusion criteria diagnosis one four primary genotypes scd age 1019 years health literacy evaluated using newest vital sign nvs frequencies percentages calculated variables independent samples ttests conducted evaluate differences health literacy scores based upon differing healthseeking behaviors results mean age participants 148 years sd 22 mean nvs score 27 sd 16 two common responses go first health information internet 296 n 40 health care providers 274 n 37 statistical difference nvs scores adolescents using internet versus health care providers first source health information t75 12 p 22 discussion knowledge healthseeking behaviors health literacy adolescents scd gives insight design evaluation future interventions improve health health literacy population