V Lindström, A-C Falk
Emergency care nurses' self-reported clinical competence before and after postgraduate education - a cross-sectional study
International emergency nursing
active involvement persons living dementia plwd longterm care ltc users research essential less developed compared patient groups however involvement research important also feasible study aims provide overview methods facilitators barriers involving plwd ltc users scientific research systematic literature search across 12 databases december 2020 identified studies involving plwd ltc users carers beyond research subjects describing methods models involvement qualitative descriptions involvement methods underwent risk bias assessment using critical appraisal skills programme casp qualitative checklist 2018 data collection sheet microsoft excel thematic analysis used synthesize results eighteen included studies delineated five core involvement methods spanning research phases advisory groups formal informal research team meetings action groups workshops coconducting interviews additionally two coresearch models plwd carers found two studies detailed ltc user involvement methods four distinct involvement roles identified consulting advisory roles coanalysts coresearchers partners review also addressed barriers facilitators good practices preparation execution translation phases research emphasizing importance diversity bias reduction resource allocation trustbuilding clear roles ongoing training inclusive support highlighted planning enough time active involvement important ensure researchers time build trusting relationship meet personal needs preferences plwd ltc users carers researchers advised presume meaning burden avoid deficit perspective flexible emergent design could aid involved persons ownership research process prospero 2021 crd42021253736