Samara Danel, Jules Chiffard-Carricaburu, Francesco Bonadonna, Anna P Nesterova
Exclusion in the field: wild brown skuas find hidden food in the absence of visual information
Animal cognition
patient public involvement ppi initiatives involving patients chronic respiratory disease crd rare therefore study aimed explore perspectives patients crd carers interested citizens regarding relevance need ppi network suggestions implementation qualitative study based focus groups conducted recruitment occurred invitations social media platforms patients participated previous asthma studies team three focus groups conducted via video conference using semistructured guide thematic analysis performed two independent researchers discussed extended team fifteen patients crd one carer one interested citizen 13 females median 36 range 1872 years participated participants acknowledged importance implementing collaborative network demonstrated interest integrated participants acknowledged importance involvement several phases research cycle main aim identified network facilitate communication patients researchers participants regarded integration patients carers researchers healthcare professionals different scientific areas relevant use digital platforms attract members support work together group dynamics regular meetings relevant practical considerations implementing network identified facilitators engagement sharing experiences researchers healthcare professionals support feedback schedule flexibility identified barriers included amount time dedicated low healthdigital literacy potential detachment nondiagnosed patients low symptom impact daily life patients carers citizens acknowledged relevance implementing collaborative network demonstrated interest active participation every stage health research cycle deeper knowledge barriers facilitators identified study could support implementing initiatives portugal study designed research team included one patient asthma one carer specifically involved building study protocol interview guide also gave feedback regarding electronic consent form short sociodemographic questionnaire created namely removing noncontributing words phrases rewording expressions lay summary written another patient asthma participants study invited implement integrate conectar networka collaborative network research respiratory health portugal chronic respiratory patients active role coinvestigators study aimed acknowledge patients citizens considered patient public involvement network useful whose main purpose would facilitate communication patients researchers study based online group interviews carried patients chronic respiratory diseases interested citizens recruited social media platforms participants considered bringing together patients carers researchers healthcare professionals valuable sharing different experiences perspectives may help patients improve daily lives increase research quality conclusion patients agree implementing collaborative network researchers healthcare professionals participating health research cycle quite preponderant acknowledging help deter network may beneficial implementing type initiative portugal