Michael S. Schechter|Tiebin Liu|Minn Soe|Mark E. Swanson|Elisabeth Ward|Judy Thibadeau
Sociodemographic Attributes and Spina Bifida Outcomes
Children's Hospital of Richmond at VCU|Virginia Commonwealth University|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention|Carter Center|National Center on Birth Defects and Developmental Disabilities|Centers for Disease Control and Prevention
background national spina bifida patient registry nsbpr begun 2009 help understand natural history spina bifida sb effects treatments provided sb clinics used nsbpr explore relationship sociodemographic characteristics sb outcomes methods using nsbpr data collected 2009 2012 examined unadjusted association demographic characteristics 4 sb outcomes bowel continence bladder continence mobility presence pressure sores developed multivariable logistic models explore relationships controlling sb clinic sb type level lesion results data available 2054 patients amplt22 years age 10 sb clinics multivariable models older age groups likely continence pressure sores less likely community ambulatory males patients without private insurance less likely continent community ambulatory nonhispanic blacks less likely continent level lesion associated outcomes sb type associated pressure sores outcomes except community ambulation showed significant variation across clinic sites conclusions sociodemographic attributes associated sb outcomes particular males nonhispanic blacks patients without private insurance less favorable outcomes age impact well characteristics need considered clinicians care patient population factored casemix adjustment evaluating variation clinical functional outcomes among different sb clinics