Wendy G Parsons, Gabriel M Garcia, Pamela K Hoffman
Evaluating school wellness policy in curbing childhood obesity in Anchorage, Alaska
The Journal of school nursing : the official publication of the National Association of School Nurses
tumor genomic profiling tgp examines genes somatic mutations specific patients tumor identify targets cancer treatments also uncover secondary hereditary germline mutations patients unprepared make complex decisions related information blackafrican american aa cancer patients especially risk lower health literacy higher levels medical mistrust lower awareness knowledge genetic testing little known tgp attitudes preferences five inperson focus groups conducted blackaa cancer patients n 33 ncidesignated cancer center affiliated oncology unit urban safetynet hospital located philadelphia focus groups explored participants understanding tgp cultural beliefs genetics medical mistrust perceptions informed decisionmaking participants mostly female 818 onethird college education mean age 57 sd 1135 patients 333 reported never heard tgp 485 aware tgp part cancer treatment qualitative analysis guided principles applied thematic analysis yielded five themes 1 mistrust medical institutions spurring independent healthinformation seeking 2 genetic testing results empowering overwhelming 3 providerpatient communication obviate medical mistrust 4 unsupportive patientfamily communication undermines interest secondaryhereditary risk communication 5 importance developing centralized patient support systems outside treatment decisions results improve understanding blackaa patients perceive tgp interventions developed assist making informed decisions secondary hereditary results