Ana Isabel Martins, Gonçalo Santinha, Ana Margarida Almeida, Óscar Ribeiro, Telmo Silva, Nelson Rocha, Anabela G Silva
Consensus on the Terms and Procedures for Planning and Reporting a Usability Evaluation of Health-Related Digital Solutions: Delphi Study and a Resulting Checklist
Journal of medical Internet research
paper make case importance adolescent sexual health research argue requiring parental consent adolescent participation may unwarranted b inconsistent principles justice inclusiveness c confusing serve silence young people need voice sexual health researchthrough case study toronto teen survey offer concrete suggestions alternatives protecting adolescent health research participants communitybased settings promoting ethical research approachesstrategies suggested include 1 adopting communitybased participatory research approach 2 careful attention youthfriendly protocols consent procedures 3 proper training research staff peer researchers 4 partnering experienced community based youthserving agencies 5 paying maximum attention issues confidentiality anonymity 6 valuing participation appropriatelyinstitutional review boards researchers encouraged adopt localized contextdependent strategies attend unique vulnerabilities particular study populations attention flexibility vulnerability communityspecific needs necessary ensure appropriate ethical research practices attend health wellbeing young people