Karolina M Lempert, Lena Schaefer, Darby Breslow, Thomas D Peterson, Joseph W Kable, Joseph T McGuire
Statistical information about reward timing is insufficient for promoting optimal persistence decisions
Cognition
measures healthrelated quality life hrqol accompanied values utilities required estimate qualityadjusted lifeyears crucial determining health benefits within economic evaluation health technology assessment several generic conditionspecific measures instruments hrqol accompanied values currently exist application child populations however lack structured summary guidelines recommendations applying measures practice protocol describes systematic review guidelines recommendations child proxy completion childspecific measures hrqol aims review 1 identify summarise published guidelines recommendations existing childspecific measures hrqol 2 determine whether identified guidelines recommendations differ instrument child characteristics 3 identify current gaps guidelines recommendations 4 identify best practices child self proxy assessment paediatric hrqol measurement economic evaluation health technology assessment review identify collate synthesise published guidelines recommendations existing childspecific utility measures hrqol electronic databases searched include cochrane library medline scopus web science econlit psycinfo cinahl embase informit search extended websites 1 international organisations health technology assessment 2 regulation health economics hrqol outcomes research 3 instrument developers three reviewers independently screen titles abstracts inclusion criteria narrative synthesis describe key features guidelines identified ethical approval required proposed systematic review use primary data paper systematic review submitted peerreviewed journal publication crd42020207160