David S. Tulsky|Pamela A. Kisala|David Victorson|Noelle E. Carlozzi|Tamara Bushnik|Mark Sherer|Seung W. Choi|Allen W. Heinemann|Nancy Chiaravalloti|Angelle M. Sander|Jeffrey Englander|Robin A. Hanks|Stephanie A. Kolakowsky?Hayner|Elliot J. Roth|Richard Gershon|Mitchell Rosenthal|David Cella
TBI-QOL
Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)|Roth and Rau (Germany)|Rosenthaler + Partner (Switzerland)
use patientcentered approach participatory action research design combined advanced psychometrics develop comprehensive patientreported outcomes pro measurement system specifically individuals traumatic brain injury tbi tbi qualityoflife tbiqol measurement system expands work large pro measurement initiatives patientreported outcomes measurement information system neurology qualityoflife measurement initiativefive tbi model systems centers across united statesadults tbiclassical modern test development methodologies used qualitative input obtained individuals tbi tbi clinicians caregivers individuals tbi multiple methods including focus groups individual interviews patient consultation cognitive debriefing interviews item pools field tested large multisite sample n 675 calibrated using item response theory methodstwentytwo tbiqol item banksscalesthe tbiqol consists 20 independent calibrated item banks 2 uncalibrated scales measure physical emotional cognitive social aspects healthrelated quality lifethe tbiqol measurement system potential common data element tbi research enhance collection healthrelated qualityoflife pro data rehabilitation research clinical settings