Rebekah McWhirter|Christine Critchley|Dianne Nicol|Don Chalmers|Tess Whitton|Margaret Otlowski|Michael Burgess|Joanne L. Dickinson
Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool
University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of British Columbia|University of Tasmania
public trust critical project requiring significant public support monetary terms encourage participation research community widely recognized centrality public trust garnered community consultation success largescale epidemiology paper examines potential utility deliberative democracy methodology within public health research setting deliberative democracy event undertaken tasmania australia part wider program community consultation regarding potential development tasmanian biobank twentyfive tasmanians diverse backgrounds participated two weekends deliberation involving elements information gathering discussion identification issues formation group resolutions participants demonstrated strong support tasmanian biobank deliberations resulted specific proposals relation consent privacy return results governance funding commercialization benefit sharing exhibited high degree satisfaction event confidence outcomes deliberative democracy methodology useful tool community engagement addresses limitations traditional consultation methods