Elisa J. Gordon|Joe Feinglass|Paula Carney|Daney I Ramirez|María Mercedes Balcells Oliveró|Kate O’Connor|Jessica MacLean|James Brucker|Juan Carlos Caicedo
An Interactive, Bilingual, Culturally Targeted Website About Living Kidney Donation and Transplantation for Hispanics: Development and Formative Evaluation
Northwestern University|Northwestern University|Chicago State University|Panama Canal Authority|National Kidney Foundation|Grant Healthcare Foundation|Northwestern University|Northwestern University|Northwestern Memorial Hospital|Northwestern University
kidney shortage continues grow patients waitlist increasingly turning live kidney donors transplantation despite disproportionately higher prevalence endstage kidney disease eskd fewer waitlisted hispanic patients received living donor kidney transplants ldkts nonhispanic whites 2014 although lack knowledge identified barrier living kidney donation lkd among hispanics little known information needs bilingual educational resources provide transplantrelated information addressing hispanics specific concernsthis paper describes process developing bilingual website targeted hispanic community website designed increase knowledge lkd among hispanic patients eskd families public inspired educational sessions targeted hispanic transplant patients provided northwestern universitys hispanic kidney transplant programnorthwestern faculty partnered national kidney foundation illinois expertise eskd hispanic community partners across chicago area established community advisory board cab 10 chicagoarea hispanic community leaders provide insight cultural concerns community patients needs website content development informed 9 focus groups 76 adult hispanic kidney transplant recipients living kidney donors dialysis patients general hispanic public website development effort guided community input images telenovela scripts messages initial development formal usability testing conducted 18 adult hispanic kidney transplant recipients dialysis patients living kidney donors identify ways improve navigability design content comprehension cultural sensitivity usability testing revealed consistently high ratings easy navigate informative culturally appropriate banduras social cognitive theory gagnes conditions learning theory guided website design facilitate adult learningthe website infrmate living kidney donation hispanicslatinos infrmate acerca de la donacin de rin en vida includes six sections treatment options donation stepbystep benefits risks financial issues immigrant issues cultural beliefs myths sections host 510 interactive messages summarize important points link detailed explanations users interested learning specific issues website hosts interactive videos multimedia testimonials telenovelas games quizzes photographs videos hispanic living donors shown promote pride ownershipour success developing website driven development team expertise transplantation social science evaluation instructional design hispanic perspectives patientcentered approach toward content design based feedback usability testing cab website sensitive hispanic cultural sensibilities nearly completed formal evaluation websites impact increasing hispanics knowledge lkd disseminate website thereafter