Christoph I. Lee|Lawrence W. Bassett|Mei Leng|Sally L. Maliski|Bryan B. Pezeshki|Colin Wells|Carol M. Mangione|Arash Naeim
Patients’ willingness to participate in a breast cancer biobank at screening mammogram
University of Washington|University of California, Los Angeles|University of California, Los Angeles|University of California, Los Angeles
characterize patients willingness donate biospecimen future research part breast cancerrelated biobank involving general screening population performed prospective crosssectional study 4217 women aged 2189 years presenting facilities screening mammogram december 2010 october 2011 hipaacompliant study approved institutional review board collected data patients interest actual donation biospecimen motivators barriers donating demographic information personal breast cancer risk factors multivariate logistic regression analysis performed identify patientlevel characteristics associated increased likelihood donate mean patient age 578 years sd 111 years 660 27854217 patients willing donate blood saliva visit 564 23784217 actually donated women college education 127 p 0003 older age 102 p 0001 previous breast biopsy 123 p 0012 family history breast cancer 123 p 0004 comorbidity 122 p 0014 likely donate asianamerican women significantly less likely donate 074 p 0005 major reason donating help future patients 423 major reason declining donation privacy concerns 223 large proportion women participating breast cancer screening registry willing donate blood saliva biobank among minority participants asianamerican women less likely donate qualitative research required identify novel active recruitment strategies insure involvement