Leanne Mullan, David Skinner
Evaluation of a visiting credentialled diabetes educator program in remote western Queensland, Australia
Australian journal of primary health
abstract background clinical research psychological aspects disorders sex development dsd focused psychosexual differentiation relatively little attention directed toward parents experiences early clinical management influence patient family psychosocial adaptation objectives characterize parental experiences early clinical care children born dsd study design content analysis interviews parents n 41 28 children newborn 6 years dsd results four major domains emerged salient parents 1 gender assignment process 2 decisions regarding genital surgery 3 disclosing information childs dsd 4 interacting healthcare providers findings suggested discordance scientific parental understandings determinants sex gender parents expectations regarding benefits genital surgery appear largely met however parents still concerns childs future physical social sexual development two areas experienced many parents particularly stressful 1 uncertainties regarding diagnosis optimal management 2 conflicts maintaining privacy versus disclosing condition access social support conclusions parents experiences gaps understanding used inform clinical care patients dsd families improving communication parents providers parents support providers throughout early clinical management process may important decreasing stress improving outcomes families children dsd