Lotti Orwelius|Mats Nilsson|Evalill Nilsson|Marika Wenemark|Ulla Walfridsson|Mats Lundström|Charles Taft|Bo Palaszewski|Margareta Kristenson
The Swedish RAND-36 Health Survey - reliability and responsiveness assessed in patient populations using Svensson’s method for paired ordinal data
Linköping University|Region Jönköpings län|Karolinska Institutet|Linköping University|Linköping University|Lund University|Centre of Registers Vastra Gotaland|Region Västra Götaland
short form 36item survey one commonly used instruments assessing healthrelated quality life two identical versions original instrument currently available public domain license free rand36 commercial sf36 rand36 available swedish purpose study threefold translate culturally adapt rand36 swedish evaluate reliability responsiveness using svenssons method paired ordered categorical data assess usability electronic version questionnaire translation process included forward backward translations reconciliation testretest reliability examined period twoweeks 84 patients undergoing dialysis chronic kidney disease responsiveness examined 97 patients 2 months cardiac rehabilitation program usability tests cognitive debriefing electronic questionnaire carried 18 patients swedish translation rand36 conceptually equivalent english version testretest reliability supported nonsignificant relative position rp values among dialysis patients rand36 subscales range 002 010 confidence intervals ci included zero responsiveness demonstrated significant improvements rp values among cardiac rehabilitation patients subscales range 022036 lower limits ci 01 except two subscales general health rp 002 ci 013 010 role functioningemotional rp 003 ci 009 016 cardiac rehabilitation patients sizable individual variation rv 02 also shown pain energyfatigue social functioning subscales electronic version rand36 found easy intuitive use results provide evidence supporting reliability responsiveness newly translated swedish rand36 userfriendliness electronic version svenssons method paired ordinal data able characterize direction size differences among patients responses different time points also variations response patterns within groups method therefore besides suitable ordinal data also important novel tool gaining insights patients response patterns treatment interventions thus informing individualized care