Jessica R Fernandez, Paula D Strassle, Jennifer Richmond, Vickie M Mays, Allana T Forde
County-level barriers in the COVID-19 vaccine coverage index and their associations with willingness to receive the COVID-19 vaccine across racial/ethnic groups in the U.S
Frontiers in public health
caring patients congenital upper limb differences culd requires understanding unique psychosocial challenges study purpose describe needs children culd caregivers develop group curriculum mixedmethod study included 13 mothers one father children culd age 3 months 14 years mean 72 43 years using patientreported outcomes measurement information system parent proxy reports caregiver interviews patientreported outcomes measurement information system peer relationships 481 109 pain interference 445 75 tscores average average scores physical function upper extremity 319 121 caregivers expressed high interest groups create community mutual support covering themes responding questions strangers social coping skills building selfconfidence accessing resources advocacy skills advice adults culd access support group curriculum addressing culdrelated patient family needs may improve care