Yi Shan, Meng Ji
Factors associated with COVID-19 misinformation rebuttal among college students: a descriptive study
Frontiers in public health
systemic lupus erythematosus sle lifethreatening chronic autoimmune disease requiring long term subspecialty care due complex chronic nature childhoodonset sle csle severe adultonset csle population south africa reported even higher risk patients elsewhere therefore critical promptly diagnose treat manage csle paper aim describe evaluate barriers enablers appropriate longterm care csle south africa perspective caregivers parents family members caregivers n 22 recruited pediatric adult rheumatology clinics individuals eligible cared youth 19 years diagnosed csle satisfied least four eleven acr sle classification criteria individual indepth semistructured interviews conducted january 2014 december 2014 explored barriers facilitators ongoing chronic care csle data analyzed using applied thematic analysis four barriers chronic care engagement retention identified knowledge gap financial burdens social stigma sle complexity south african medical system additionally found three facilitators patient caregiver education robust support system caregiver financial support caregiver patient findings highlight multiple intersecting barriers routine longitudinal care csle south africa suggest might group diagnosed children dont receive followup care subject loss followup csle requires ongoing treatment care thus different barriers may interact compound time followup visit south african csle patients high risk poor outcomes south african care teams work overcome barriers place attention facilitators improve care retention patients create model less resourced settings