Renxi Li, Vincent Pozorski, Kevin Dabbs, Maureen Haebig, Christopher R Cox, Colleen Pletcher, Alexandra Wey, Amy Barzgari, Frances Theisen, Ozioma Okonkwo, Catherine L Gallagher
A longitudinal evaluation of personalized intrinsic network topography and cognitive decline in Parkinson's disease
The European journal of neuroscience
family caregivers patients chronic conditions face challenges emotional physical stress lead caregiver burden good sense coherence soc crucial promoting resilience positive health outcomes coping caregivers high soc optimistic caregiving roles finding meaning purpose responsibilities background looked contextual influences facilitate impede sense coherence family caregivers patients chronic conditions requiring homebased longterm care conducted telephonic interviews 10 selfidentified primary family caregivers patients chronic conditions utilized semistructured interview guidelines transcribed interviews verbatim performed thematic analysis potential factors influencing caregivers soc identified inductive coding allowing themes emerge data however report themes along three components soc good knowledge disease conditions open communication care recipients providers past caregiving experiences contribute improving comprehensibility insufficient knowledge condition could distressing effective management requires adapting care strategies learning planning utilizing available resources support networks play crucial role however insufficient caregiver support neglecting ones health result distress disruptions care management maintaining positive perspectives ascribed values interpersonal connections enhance meaningfulness among caregivers interpretations may apply caregivers affective disorders various aspects influence comprehensibility manageability meaningfulness pertaining situation family caregivers turn impact wellbeing ability provide quality care understanding factors help create support systems targeted interventions strategies reduce caregiver burden improve quality life