Avrum Gillespie|Heather Hammer|J. Lee|C. Nnewihe|Jennifer Gordon|P. Silva
Lack of Listing Status Awareness: Results of a Single-Center Survey of Hemodialysis Patients
Temple University|Temple University|Montefiore Medical Center|Temple University|Johns Hopkins University|Temple University
study surveyed hemodialysis patients urban transplant center serving predominantly african american population identify existing potential barriers transplantation survey used dialysis patient transplant questionnaire dptq collect selfreported data including interest deceased donor kidney transplant selfreported listing status compared patients survey data unos listing computerized medical record time interview among 116 patients surveyed 83 716 reported interest deceased donor kidney transplant eighteen 529 34 patients undergoing pretransplantation workup unaware true listing status 889 patients mistakenly believed wait listed patients mistakenly thought listed undergoing workup finding significant number hemodialysis patients want deceased donor kidney transplant mistakenly think listed documentable deficiency communication potential barrier transplantation finding highlights correctable problem communication work flow could help improve transplant center effectiveness also reveals selfreported waiting list status significantly overestimated true waiting list status patients time interview