Ann Choryan Bilbrey|Marika Humber|Edward D. Plowey|Iliana Garcia|Lakshmi Chennapragada|Kanchi Desai|Allyson Rosen|Nusha Askari|Dolores Gallagher?Thompson
The Impact of Latino Values and Cultural Beliefs on Brain Donation: Results of a Pilot Study to Develop Culturally Appropriate Materials and Methods to Increase Rates of Brain Donation in this Under-Studied Patient Group
Stanford University|Stanford University|Palo Alto University|Stanford University|Palo Alto University|Stanford University|Stanford University|Stanford University|Stanford University|Veterans Health Administration|Stanford University|Stanford University
objectives increasing number latino persons dementia consent brain donation bd upon death important public health goal yet realized study identified need culturally sensitive materials answer questions support decisionmaking process familymethods information existing rates bd obtained alzheimers disease centers several methods data collection query nacc database contacting centers focus groups online survey assessing current protocol materials used give needed background create culturally appropriate bd materialsresults decision made brochure undecided enrollees would beneficial discuss bd family members needing details stepbystep handout would provide additional informationconclusions team collaboration engagement others community work latinos dementia believe process allowed us successfully create culturally appropriate informational materials address sensitive topic hispaniclatino familiesclinical implications brain tissue needed knowledge underlying biological mechanism neurodegenerative diseases however sensitive topic materials assist family discussion facilitate familys followthrough bd