Anna Winterbottom|Teresa Gavaruzzi|Andrew Mooney|Martin Wilkie|Simon Davies|D. Crane|Ken Tupling|Paul D. Baxter|David Meads|Nigel Mathers|Hilary Bekker
Patient Acceptability of the Yorkshire Dialysis Decision AID (YODDA) Booklet: A Prospective Non-Randomized Comparison Study across 6 Predialysis Services
University of Leeds|University of Leeds|St James's University Hospital|Sheffield Kidney Institute|Kidney Care UK|Kidney Care UK|Northern General Hospital|University of Leeds|University of Leeds|Northern General Hospital|University of Leeds
background patients satisfied kidney care want support making dialysis choices predialysis leaflets vary across services sufficient enable patients informed decision making describe acceptability patient decision aid feasibility evaluating effectiveness within usual predialysis practice methods prospective nonrandomized comparison design usual care usual care plus yorkshire dialysis decision aid booklet yodda 6 referral centers yorkshirehumber uk patients sustained deterioration kidney function consenting c patients completed questionnaires predialysis consultation t1 6 weeks later t2 measures assessed yoddas utility support patients decisions integration within usual care results usual care n 105 yodda n 84 participant characteristics similar male 62 white 94 age mean 626 standard deviation sd 144 kidney disease severity glomerular filtration rate egfr mean 147 sd 37 decisional conflict lt 25 choicepreference home versus hospital dialysis approximately 5050 patients valued receiving yodda reading 96 sharing family 72 yodda participants higher scores understanding kidney disease reasoning options feeling control sharing decision family study engagement varied center estimated range 14 49 mean 45 participants varied completion decision quality measures conclusions receiving yodda part predialysis education valued useful patients worsening kidney disease integrating yodda actively within predialysis programs meet clinical guidelines patient need support dialysis decision making context patients lifestyle