Ladan Golestaneh, Michal Melamed, Ryung S Kim, Jennifer St Clair Russell, Michele Heisler, Lisandra Villalba, Taylor Perry, Kerri L Cavanaugh
Peer mentorship to improve outcomes in patients on hemodialysis (PEER-HD): a randomized controlled trial protocol
BMC nephrology
work contributed development core outcome set cos heavy menstrual bleeding hmb objective determine research outcomes best reflect hmb affects womens lives identify additional research outcomes previously reported important explore record participants reasoning prioritising outcomes use information reinforce patients voice later phases cos development patient workshop discussions telephone interviews east london teaching hospital inclusion criteria participants must 18 years old either partner history hmb good understanding written spoken english 41 participants recruited study 8 women 1 man completed study eight female participants representative different underlying causes treatments hmb participants ranged age early 20s 60s represented range ethnic groups five main themes identified important patients restriction relationships isolation emotions selfperception pain perceptions treatment identified eight coding nodes correspond list previously reported outcomes studies hmb nodes consolidated became five new outcomes potential inclusion cos hmb stops women living lives would wish affects relationships education careers reproductive wishes social life mental health condition girls women prime lives many constant threat heavy period starting means sacrifice freedom societal economic costs women incapacitated every month effect everyone cos study registered comet core outcome measures effectiveness trials initiativeproject reference number 789