Christopher R. Long|Rachel S. Purvis|Elizabeth Flood?Grady|Kim S. Kimminau|Robert L. Rhyne|Mark R. Burge|M. Kathryn Stewart|Amy J. Jenkins|Laura P. James|Pearl A. McElfish
Health researchers’ experiences, perceptions and barriers related to sharing study results with participants
University of Arkansas for Medical Sciences|University of Arkansas for Medical Sciences|University of Florida|University of Kansas Medical Center|University of New Mexico|University of New Mexico|University of Arkansas for Medical Sciences|University of Arkansas for Medical Sciences|University of Arkansas for Medical Sciences|University of Arkansas for Medical Sciences
although research participants generally interested receiving results studies participate health researchers rarely communicate study findings participants present study designed provide opportunity broad group health researchers describe experiences concerns related sharing results ie aggregate study findings research participantswe used mixedmethods concurrent triangulation design relying online survey capture health researchers experiences perceptions barriers related sharing study results participants respondents health researchers conduct research includes consent human subjects hold current appointment accredited academic medical institution within united states quantitative data analytic strategy focused itemlevel descriptive analyses qualitative data analyses focused priori themes emergent subthemesrespondents 414 researchers 44 academic medical institutions 645 reported results always shared participants yet 608 respondents could identify studies leadership role results shared emergent subthemes researchers reasons results shared included participant ownership findings benefits results sharing science reasons sharing included concerns related participants health literacy participants lack desire results across respondents described barriers results sharing majority described logistical barriersstudy findings contribute literature documenting researchers perspectives experiences sharing results research participants inform efforts improve results sharing respondents indicated health research results always shared participants although extent many respondents described barriers results sharing well reported reasons share results suggests difficulties onesizefitsall approach improving results sharing