Sara Riggare|Pär J. Höglund|Helena Hvitfeldt Forsberg|Elena Eftimovska|Per Svenningsson|Maria Hägglund
Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden
Karolinska Institutet|Jönköping University|Karolinska Institutet
effective selfmanagement key living well parkinsons disease one important aspect diseasespecific knowledge article explores people parkinsons disease sweden 1 acquire diseasespecific knowledge 2 use parkinsons diseaserelated healthcare data collected online survey 346 respondents 1687 years old median age 68 years 51 male time since diagnosis 031 years median time 7 years results show diseasespecific knowledge mainly found online especially women parkinsons disease people parkinsons disease working age people parkinsons disease sweden see neurologist 1 h less per year one two people parkinsons disease regular contact parkinsons diseaserelated healthcare professionals also find people parkinsons disease reporting higher levels specific knowledge also likely satisfied amount time get neurologist regardless amount time