Sugandha Marwaha, Mousumi Goswami, Binny Vashist
Prevalence of Principles of Piaget's Theory Among 4-7-year-old Children and their Correlation with IQ
Journal of clinical and diagnostic research : JCDR
stakeholders increasingly expect research care delivery guided optimize patient experiences however standardized tools engage patients gather highquality data experiences priorities desired outcomes publicly available objective study develop test toolbox diseaseagnostic interview guide template accompanying resources assist researchers engaging patients living chronic disease dialogue experiences guided multidisciplinary workgroup targeted literature review pubmed conducted followed group discussions identifythematically organize patient experience concepts development conceptual model drafting interview guide template patientfacing visual materials testedrefined via cognitive n 5 pilot n 30 interviews conducted virtually us patients diagnosed chronicpotentially disabling conditions december 2020 april 2021 patientfacing tools reviewed health literacy experts applicabilityaccessibility englishspeaking adults selfreported receiving chronic condition diagnosis least 6 months prior participated 6090 min interview patient experience concepts organized thematically three domains 1 life diagnosis 2 experiences getting diagnosis 3 experiences living diagnosis plain language consent sheet template interview guide template patient experience conceptual model developed revised based input interviewees interviewers workgroup diseaseagnostic patientengagement toolbox developed tested capture patient experience data materials customized based study objectives leveraged various stakeholders identify opportunities enhance patient centricity healthcare delivery research