Rick Iedema|Sara Jane Allen|Kate Britton|Donella Piper|Amanda Baker|Carol Grbich|Alfred Allan|Liz Jones|Anthony Tuckett|Allison Williams|Elizabeth Manias|T. H. Gallagher
Patients' and family members' views on how clinicians enact and how they should enact incident disclosure: the "100 patient stories" qualitative study
Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center|National Postdoctoral Association|University of Technology Sydney|National Postdoctoral Association|Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center|University of Technology Sydney|National Postdoctoral Association|Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center|National Postdoctoral Association|Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center|Sydney South West Area Health Service|Flinders University|Edith Cowan University|National Postdoctoral Association|Griffith University|University of Washington Medical Center|National Postdoctoral Association|Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center|University of Queensland|Melbourne Health|University of Melbourne|Melbourne Health|University of Melbourne|National Postdoctoral Association|Sydney South West Area Health Service|Flinders University|Edith Cowan University|Griffith University|University of Washington Medical Center
investigate patients family members perceptions experiences disclosure healthcare incidents derive principles effective disclosureretrospective qualitative study based 100 semistructured depth interviews patients family membersnationwide multisite survey across australia39 patients 80 family members involved high severity healthcare incidents leading death permanent disability long term harm incident disclosure recruitment via national newspapers 43 health services incidents occurred 28 two internet marketing companies 27 consumer organisations 2participants recurrent experiences concerns expressed interviewsmost patients family members felt health service incident disclosure rarely met needs expectations expected better preparation incident disclosure shared dialogue went wrong followup support input time ripe closure information subsequent improvement process analysis provided basis formulation set principles effective incident disclosuredespite growing prominence open disclosure discussion healthcare incidents still falls short patient family member expectations healthcare organisations providers strengthen efforts meet patients family members needs expectations