Jessica M. Valenzuela|Michael Seid|Beth Waitzfelder|Andrea Anderson|Daniel P. Beavers|Dana Dabelea|Lawrence M. Dolan|Giuseppina Imperatore|Santica M. Marcovina|Kristi Reynolds|Joyce P. Yi?Frazier|Elizabeth J. Mayer?Davis
Prevalence of and Disparities in Barriers to Care Experienced by Youth with Type 1 Diabetes
Nova Southeastern University|Cincinnati Children's Hospital Medical Center|Pacific Health Research and Education Institute|Kaiser Permanente Center for Health Research|Wake Forest University|Wake Forest University|Colorado School of Public Health|University of Colorado Denver|Cincinnati Children's Hospital Medical Center|National Center for Chronic Disease Prevention and Health Promotion|Centers for Disease Control and Prevention|University of Washington|Kaiser Permanente|Seattle Children's Hospital|University of North Carolina at Chapel Hill
describe prevalence access process barriers health care examine relationship sociodemographic disease factors large diverse cohort us youth type 1 diabetesa crosssectional analysis 780 youth participated search diabetes youth study diagnosed type 1 diabetes 20022005 experience barriers care collected parent report questionnaires analyses included multivariate regression models predict presence specific barriers careoverall 817 participants reported least one barrier 3 common costs 475 communication 430 getting needed information 484 problems access care regular provider receiving contextual care care takes account personal family context associated poorer glycated hemoglobin levels adjusted multivariate models indicated barriers related access regular provider cost likely youth low family income without public health insurance barriers associated processes quality care contextual care communication likely hispanic youth whose parents less educationthis study indicates large proportion youth type 1 diabetes experience substantial barriers care barriers access associated processes quality care differed sociodemographic characteristics future investigators expand knowledge systemic processes lead disparate outcomes youth diabetes assess potential solutions