Hsiao Ling Yang|Yueh?Chih Chen|Jou?Kou Wang|Bih?Shya Gau|Philip Moons
An Evaluation of Disease Knowledge in Dyads of Parents and Their Adolescent Children With Congenital Heart Disease
National Taiwan University|National Taiwan University Hospital|Hungkuang University|KU Leuven|National Taiwan University|National Taiwan University Hospital|Hungkuang University|KU Leuven|National Taiwan University|National Taiwan University Hospital|Hungkuang University|KU Leuven|National Taiwan University|National Taiwan University Hospital|Hungkuang University|KU Leuven|National Taiwan University|National Taiwan University Hospital|Hungkuang University|KU Leuven
congenital heart disease cghd considered chronic disease many patients adopt healthy lifestyle avoid complications patients cghd parents need good knowledge heart defect consequencesthe aims study evaluate patient parental knowledge cghd explore related factors respective disease knowledgethis study included 116 dyads adolescents cghd 431 male adolescents aged 1218 years one parents 793 mothers median age 46 years participants completed leuven knowledge questionnaire congenital heart disease calculated correct rate score determine overall disease knowledge respondentsthe correct rate score 388 adolescents cghd 514 parents 769 p 001 determinant knowledge parents educational level standardized estimate 6160 p 001 adolescents knowledge determined age standardized estimate 2242 p 002 parental knowledge standardized estimate 0311 p 001although parents significantly greater disease knowledge children level knowledge parents adolescents suboptimal parents knowledge influenced adolescents knowledge educational interventions target adolescent patients parents transition programs play pivotal role respect