Seyed Reza Saadatmehr, Abouali Vedadhir, Akram Sanagoo, Leila Jouybari
Raising patients hope in despair: The culture of nursing care of burn pain: An ethnographic study
Journal of education and health promotion
advancements treatment chronic liver disease cld including liver transplantation lt quality life satisfaction lt become important issue pediatric patients parents evidencebased information needed describe assess impact pediatric cld parents satisfaction parents treatment better understand needs assess satisfaction parents pediatric lt patients parents pediatric cld patients survey data collected parents pediatric patients underwent lt january 2010 april 2017 lt group n 91 parents pediatric patients chronic liver disease cld group n 94 group comparisons made based pediatric healthrelated quality life pedsql health care parent satisfaction scale impact family scale ifs demographic characteristics pedsql administered parents phone interview results used assess health carerelated satisfaction parents ifs used assess impact childs cld status family demographic variables education level elementary vs middle vs high vs university monthly income low vs middle vs high place residence village vs town vs city compared cld lt parent groups finally pedsql ifs results also analyzed according demographic variables total 185 parents aged 19 65 years included statistically significant differences lt cld groups terms career p 0001 monthly income p 0016 education level p 0041 according pedsql results family inclusion communication technical skills emotional needs overall satisfaction significantly different groups lt group consistently higher scores p 0001 additionally scores ifs parameters financial impact familialsocial impact personal strain total impact consistently higher lt group p 0001 statistically significant relationships education level monthly income place residence according ifs results pedsql results inverse relationships difficulties parents experience childs health education levels monthly income place residence however relationship found education level monthly income place residence satisfaction health care services provided hospital according pedsql results parents children underwent lt satisfied health care services provided children however difficulties parents children cld