Katarina M. Sussner|Lina Jandorf|Hayley S. Thompson|Heiðdís Valdimarsdóttir
Interest and Beliefs About BRCA Genetic Counseling Among At?Risk Latinas in New York City
Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Albert Einstein College of Medicine|Icahn School of Medicine at Mount Sinai|Reykjavík University|University of Iceland
latinas less likely use genetic services counseling testing hereditary breast andor ovarian cancer risk compared ethnic groups meanwhile little known barriers genetic counseling among latinas increased risk inherited breast cancera twophase pilot study conducted examine interest barriers beliefs brca genetic counseling among atrisk latinas new york city explore potential developing culturallytailored narrative educational tool use future studies phase 1 included quantitative telephone interviews n 15 bilingual participants personal diagnosis young age andor family history breast andor ovarian cancer quantitative results informed development narrative prototype educational presentation viewed subset participants n 10 phase 2 focus groupsdespite barriers including lack awarenessknowledge concerns related learning cancer risks family members concerns costhealth insurance participants reported positive attitudes beliefs interest learning brca genetic counseling significant increases knowledge demonstrated prepost presentation p 004there unmet need educate atrisk latinas brca genetic counseling culturallytailored educational materials including narratives may increase knowledge brca genetic counseling among underserved group effectiveness approaches tested future research larger samples