Emily P. Whitfield|Emily M. Fredericks|Sally J. Eder|Benjamin Shpeen|Jeremy Adler
Transition Readiness in Pediatric Patients With Inflammatory Bowel Disease
University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor
abstract objective transition may associated poor health outcomes limited data exist regarding inflammatory bowel disease ibd acquisition selfmanagement skills believed important process ibdspecific checklists skills developed aid transition none well studied validated study aimed describe selfassessment ability perform tasks one checklists explore relation patient age disease duration methods patients ages 10 21 years ibd recruited ipad survey queried patients selfassessment ability perform specific selfmanagement tasks task categories included basic knowledge ibd doctor visits medications treatments disease management associations age disease duration tested spearman rank correlation results total 67 patients 31 boys crohn disease n 40 ulcerative colitis n 25 indeterminate colitis n 2 participated study mean patient age 158 25 years median disease duration 5 years 2 months14 years proportion patients selfreported ability complete task without help increased age tasks including telling others diagnosis 043 p 0003 telling medical staff like trouble following treatment 037 p 0003 naming medications 028 p 002 task significantly improved disease duration conclusions selfassessment ability perform key tasks transition appears improve age disease duration important communication medical team improve age despite critical importance functioning within adult care model