Kristin Häikiö|Denise Cloutier|Jorun Rugkåsa
Is health literacy of family carers associated with carer burden, quality of life, and time spent on informal care for older persons living with dementia?
OsloMet – Oslo Metropolitan University|Akershus University Hospital|University of Victoria|University of South-Eastern Norway|Akershus University Hospital
introduction family carers cornerstones care older people living dementia family carers report extensive carer burden reduced healthrelated quality life hrqol extensive time spent informal care time health literacy hl concept associated peoples ability access health services navigate healthcare system studys aim investigate hl among family carers investigate associations hl carer burden hrqol time spent informal care method designed selfadministered survey comprising validated instruments including health literacy scale hlsnq12 measure hl relative stress scale rss measure carer burden eq5d5l instrument measure hrqol modified questions resource utilization dementia rud questionnaire measure time spent informal care time descriptive analysis addition bivariate multiple linear regressions undertaken multiple linear regression analysis used hl independent variable predict outcomes carer burden hrqol time analyses adjusted effects explanatory independent variables age gender education levels urban residency worked health personnel caring someone severemild dementia born abroad findings nonprobability sample 188 family carers across norway female age 60 found high levels hl bivariate analysis carer burden hrqol eqvalue showed significant associations hl multiple regression analyses hl statistically significantly associated carer burden b 018 ci033002 p 002 hrqol eqvalue b 0003 95 ci 0001 0006 p 004 time b 003 95 ci 006 0000 p 0046 adjusting effect independent variables conclusion one first studies investigate associations hl different outcomes family carers older people living dementia additional research associations identified needed develop understanding support family carers roles targeted support increases family carers hl may potential enhance ability provide sustainable care time