Matthew F Daley, Liza M Reifler, Jo Ann Shoup, Jason M Glanz, Allison L Naleway, Jennifer C Nelson, Joshua T B Williams, Huong Q McLean, Gabriela Vazquez-Benitez, Kristin Goddard, Bruno J Lewin, Eric S Weintraub, Michael M McNeil, Hilda Razzaghi, James A Singleton
Racial and ethnic disparities in influenza vaccination coverage among pregnant women in the United States: The contribution of vaccine-related attitudes
Preventive medicine
caregivers ie family friends essential providing care support patients undergoing hematopoietic cell transplantation hct throughout recovery traditionally delivered hospital hct increasingly provided outpatient setting potentially heightening burden caregivers extensive work examined inpatient hct caregiving experience yet little known caregiver experiences may differ based whether hct delivered inpatient outpatient basis particularly acute recovery period posthct study explored similarities differences caregiver experiences inpatient outpatient settings early recovery reducedintensity conditioning ric allogeneic hct conducted semistructured interviews n 15 caregivers adults undergoing ric allogeneic hct either inpatient n 7 outpatient n 8 recruited caregivers using purposeful criterion sampling based hct setting thematic saturation occurred interview recordings transcribed coded thematic analysis using dedoose v90 study analysis guided transactional model stress coping model adaptation family caregivers acute phase bmt three themes emerged describe similar experiences hct caregivers regardless setting 1 caregivers reported feeling like necessary yet invisible part care team 2 caregivers described learning adapt changing situations varying patient needs 3 caregivers recounted uncertainty following hct felt like existing life death also maintaining sense gratitude hope future caregivers also reported distinct experiences based transplantation setting 4 themes emerged 1 disrupted routines inpatient caregivers reported disrupted routines caring hct recipient simultaneously trying manage noncaregiving responsibilities home work outpatient caregivers reported establish new routines included frequent clinic visits patient altering pausing home work responsibilities 2 timing caregiver involvement inpatient caregivers felt involved care patient discharged hct hospitalization whereas outpatient caregivers already providing majority care earlier posttransplantation period 3 fear missing vital information inpatient caregivers worried missing vital information patients care progress physically present hospital whereas outpatient caregivers feared overlooking vital information may warrant contacting care team monitored patient home 4 perceived adequacy resources meet psychosocial practical needs inpatient caregivers reported adequate access resources ie hospitalbased services whereas outpatient caregivers felt limited access needed resourceful seeking assistance inpatient outpatient hct caregivers described similar distinct experiences acute recovery period posthct specific interventions address caregiver psychosocial needs ie distress illness uncertainty communication coping practical needs ie community resource referral preparedness homebased caregiving transplantation education hct caregivers based setting