Jean L. Raphael|Ashley M. Butler|Tiffany L. Rattler|Marc Kowalkowski|Brigitta U. Mueller|Thomas P. Giordano
Parental information, motivation, and adherence behaviors among children with sickle cell disease
Baylor College of Medicine|Baylor College of Medicine|Baylor College of Medicine|Baylor College of Medicine|Baylor College of Medicine|Baylor College of Medicine
abstract background identification psychosocial correlates health care utilization become important strategy improving clinical care objective study examine fit informationmotivationbehavioral skills imb model applied health care utilization among children sickle cell disease scd procedure participants parents 150 children ages 117 years receiving care sickle cell center parents completed questionnaires assessing information motivation adherence behaviors factors respect scd management data regarding health care utilization previous 12 months obtained parent report electronic medical records stepwise multiple regression analysis conducted determine associations imb factors health care use results parents rated highly domains information motivation adherence behaviors managing childs scd children parents reporting higher satisfaction social supports higher odds 149 95 ci 103215 two routine hematology visits previous 12 months neither information adherence behavior associated urgent routine care use among variables measured high parental illnessrelated stress child health status reported fairpoor strongest predictors urgent care use private insurance type strongest predictor routine care use conclusions among imb factors social support associated routine health care utilization social support parental illnessrelated stress may serve important modifiable targets interventions allocate needed resources families reduce unnecessary medical care pediatr blood cancer 2013 60 12041210 2013 wiley periodicals inc