Lauren M. Uhler|Rafael E. Pérez Figueroa|Mark A. Dickson|Lauren McCullagh|André Kushniruk|Helen Monkman|Holly O. Witteman|Negin Hajizadeh
InformedTogether: Usability Evaluation of a Web-Based Decision Aid to Facilitate Shared Advance Care Planning for Severe Chronic Obstructive Pulmonary Disease
IJ Research (United States)|Northwell Health|Columbia University Irving Medical Center|Ypsilanti District Library|IJ Research (United States)|Northwell Health|University of Victoria|University of Victoria|Université Laval|Centre Hospitalier Universitaire de Québec|IJ Research (United States)|Northwell Health
advance care planning may help patients receive treatments better align goals care developed webbased decision aid called informedtogether facilitate shared advance care planning chronic obstructive pulmonary disease copd patients doctorsour objective assess usability informedtogether decision aid including whether users could interact decision aid engage tasks required shared decision making whether users found decision aid acceptable implications redesignwe conducted observational study 15 patients 8 doctors two ethnically socioeconomically diverse outpatient clinics data included quantitative qualitative observations patients doctors using decision aid tablet laptop computers data semistructured interviews patients shown decision aid researcher acting doctor pulmonary doctors observed using decision aid independently asked think aloud ie verbalize thoughts thematic analysis implemented explore key issues related decision aid usabilityalthough patients doctors found informedtogether acceptable would recommend doctors use decision aid copd patients many patients difficulty understanding icon arrays used communicate estimated prognoses could articulate definitions two treatment choicesfull code resuscitate dnr minor usability problems regarding content links layout consistency also identified corresponding recommendations outlined particular participants suggested including information potential changes quality life resulting alternative advance directives doctor participants thought decision aid long thought may cause nervousness among patients due topic areaa decision aid shared advance care planning severe copd found acceptable copd patients doctors however many patient participants demonstrate understanding treatment options prognostic estimates many participants endorsed use decision aid doctors patients copd although desired information quality life design must optimize comprehensibility including revising presentation statistical information icon array feasibility integration clinical workflow including shortening decision aid