Eugenio Lomurno, Linda Greta Dui, Madhurii Gatto, Matteo Bollettino, Matteo Matteucci, Simona Ferrante
Deep Learning and Procrustes Analysis for Early Dysgraphia Risk Detection with a Tablet Application
Life (Basel, Switzerland)
polycystic ovary syndrome pcos common endocrinemetabolic disorder affecting health quality life affected across lifespan currently limited evidencebased data experience living pcos health care system including diagnosis health concerns disease management aim study assess perceptions health status health care experience disease management support affected pcos alberta canada online questionnaire completed via redcap individuals selfreporting diagnosis pcos question categories included demographics symptoms pcos time confirm diagnosis followup care health concerns information resources descriptive statistics used thematic analyses applied openresponse questions responses 194 participants living canada 93 alberta included average age 34 8 years bmi 35 9 menstrual irregularity identified 84 respondents first symptom noticed primary reason seeking medical consultation pcos diagnosis occurred average 43 years following awareness first symptoms required consultation one primary care provider 57 respondents half 53 respondents reported receiving referral specialists followup care 70 informed longterm health morbidity diabetes cardiovascular disease respondents 82 research pcos using online sources academic literature advice peer support participant themes open questions improving health care included resources support increased reliable information better education training clinicians timely diagnosis prompt referrals specialists generally compassion empathy challenges faced managing disease findings highlight health concerns challenges health care pcos alberta canada identified major gaps health care including timely diagnosis follow care supports multidisciplinary care evidencebased data used inform development pathways improve health care experience affected pcos