Ana M Abrantes, Julia Browne, Michael D Stein, Bradley Anderson, Sydney Iacoi, Sarah Barter, Zainab Shah, Jennifer Read, Cynthia Battle
A lifestyle physical activity intervention for women in alcohol treatment: A pilot randomized controlled trial
Journal of substance use and addiction treatment
background aim syndrome ds common reason disabilities caused genetic disorders due special nature disease special needs children syndrome required receive families support therefore recognition problems needs also alternatives resolving promoting life quality useful also since limited qualitative studies conducted seems necessary design qualitative study method qualitative study conducted content analysis method purposeful sampling method participation 26 participants including 15 mothers 6 fathers 3 sisters 2 brothers ds children 20222023 data collected semistructured interviews findings using content analysis method graneheim lundman 2004 main theme family selfsupporting protecting syndrome children subthemes seven including trying find informationsupport resources giving importance childs health religious beliefs family child moral education helping childs relative selfsupport developing familial support developing childs social interactions conclusion recommendations findings study showed family main source fulfilling needs children life challenges using efficient selfsupport methods study introduced family selfsupport methods terms ds children way families also manage problems children efficiently present study used trustees ds support families considering existence many problems children syndrome involvement families suggested policymakers community health managers provide basis receiving services social support example possible strengthen screening systems country diagnose disease time take quick action solve problem also increasing health insurance coverage fair distribution support resources needed people promoted quality life families also health policymakers iran take action increase life expectancy reduce deaths caused ds improving equitable distribution health resources services also public policies enhance supportive intermediation prevention life quality promotion also decrease health challenges also supposed lessen costs health care furthermore support social organizations health service providers researchers consider development intermediations health enhancing life quality promoting ds children