F C Carlos Molina|Christine Dehlendorf|Steven E. Gregorich|Miriam Kuppermann
Women’s preferences for and experiences with prenatal genetic testing decision making: Sociodemographic disparities in preference-concordant decision making
Brigham and Women's Hospital|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco
investigate womens preferred approach prenatal genetic testing decision making assess concordance preference experience conducted secondary analysis data two randomized trials conducted 20072012 survey items assessed participants preferred approach decision making whether experienced preferenceconcordant decision process logistic regression estimated relationships patient characteristics outcomes 56 women preferred autonomous decision making 39 preferred shared decision making 5 preferred providerdriven approach 57 experienced preferenceconcordant decision making bivariate analysis black women spanishspeaking latinas women less education less likely experience outcome white educated women numeracy preferring providerdriven approach fully mediated observed disparities preferenceconcordant decision making participants except spanishspeaking latinas still less likely experienced outcome accounting factors numeracy preference providerdriven decision processes language barriers key drivers disparities preferenceconcordant decision making given valuessensitive quantitative nature prenatal testing decisions nuanced counseling interventions address language barriers numeracy gaps decisionmaking preferences needed tailor counseling patients backgrounds desires