Jessica Keim?Malpass|Lisa Letzkus|Christine Kennedy
Parent/caregiver health literacy among children with special health care needs: a systematic review of the literature
University of Virginia|University of Virginia|University of Virginia
children special health care needs cshcn children medical behavioral diagnoses require services beyond generally needed pediatric populations account significant portion pediatric health care expenditures often complicated treatment regiments health literacy recently recognized key indicator quality chronic disease selfmanagement parentalcaregiver health literacy cshcn understudied area purpose systematic review assess available evidence studies investigating parentcaregiver health literacy cshcndatabases searched retrieve relevant articles inclusion dating 1998 2014 studies assessed relationship parentcaregiver health literacy outcomes pertinent cshcn included limited number studies restrictions placed type outcomethirteen studies included final review range health literacy assessments outcome ascertainment majority studies 1 focused relationship parentalcaregiver health literacy asthma outcomes 2 crosssectional study designs 3 included samples recruited pediatric clinics academic medical settingsthere several gaps literature future research needed including 1 direct assessment childadolescent health literacy 2 inclusion children comorbid conditions 3 assessment relationship health literacy health care utilization cost 4 assessment parentalcaregiver health literacy inpatient care setting