Saskia C. Sanderson|Sabrina A. Suckiel|Micol Zweig|Erwin P. Böttinger|Ethylin Wang Jabs|Lynne D. Richardson
Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public
Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai|Icahn School of Medicine at Mount Sinai
h2abstracth2h3backgroundh3 wholegenome sequencing wgs increases availability wgs educational aids needed research participants patients general public aim therefore develop accessible scalable wgs educational aid h3methodsh3 engaged multiple stakeholders iterative process 1year period culminating production novel 10minute wgs educational animated video whole genome sequencing httpsgooglhv8ezj presented animated video 281 onlinesurvey respondents videoinformation group also two comparison groups writteninformation group ini 281 noinformation group ini 300 h3resultsh3 videoinformation group 79 reported video easy understand satisfaction scores high mean 400 15 scale 5high satisfaction knowledge increased significantly significant differences knowledge compared noinformation group differences compared writteninformation group intention receive personal results wgs decisional conflict response hypothetical scenario differ three groups h3conclusionsh3 educational animated video whole genome sequencing well received sample onlinesurvey respondents work needed evaluate utility aid informed decision making wgs populations