Danielle Mayorga-Young, Jonnby LaGuardia, Callista Zaronias, Won Park, Derek Bell
An evaluation of burn fellowship program websites' presence and content
Journal of burn care & research : official publication of the American Burn Association
number patients endstage kidney disease eskd requiring renal replacement therapy sri lanka significantly rising patients depend haemodialysis carrying significant burden family caregivers develop care support patient family caregiver crucial understand caregivers experience caregiving situation therefore study aimed explore family caregivers experiences burden coping caring family member receiving haemodialysis sri lankan context qualitative study exploratory design family caregivers recruited haemodialysis unit main government sector hospital sri lanka october november 2021 purposive sampling 11 family caregivers cared family member receiving haemodialysis main government teaching hospital sri lanka least 3 consecutive months data collected individual semistructured telephone interviews analysed using qualitative content analysis results showed overarching theme striving hold let go four categories 1 feeling exhausted care burden 2 feeling burdened failing care responsibility 3 striving cope find meaning caregiving 4 coping caregiving others support results show family caregivers multifaceted burden continued caring family member receiving haemodialysis making adjustments burdensome caregiving situation despite many constraints suffering psychosocial support financial assistance including family counselling needed family caregivers community support system ensure endurance family members illness trajectory advance care planning vital alleviate care uncertainty meet care needs patients eskd particularly resourceconstrained settings