Carol A Mancuso, Laura Robbins, Stephen A Paget
Longitudinal qualitative study of paired mentor-mentee perspectives on the abstract submission process
BMC medical education
china 65000 hemophilia patients according estimations requiring overall description however former chinese studies related hemophilia based data relatively small sample size singlecenter selected multicenters specific areas study aimed provide overview patients hemophilia china basic information optimized hemophilia care policy decisions future cooperated biggest patient organization hemophilia china hemophilia home got access ten thousand registered patients hemophilia conducted national representative online survey 2021 descriptive statistics conducted describe mean standard deviation continuous variables numbers proportions categorical variables nine hundred fifty patients hemophilia aged 071 years included analysis divided 538 children 412 adults compared international research consistent results found regarding proportions hemophilia types hemophilia severity chinese patients less opportunity receive formal education lower rate employed married although children hemophilia higher household income timely treatment prophylaxis treatment leading better clinical outcomes higher hrqol adults still annual bleeds chronic pains lower eqvas scores especially adults countries findings suggest urgency promoting hemophilia care improving social adaptation hemophilia patients china