Olalekan Lee Aiyegbusi|Jessica Roydhouse|Samantha Cruz Rivera|Paul Kamudoni|P. Schache|Roger Wilson|Richard Stephens|Melanie Calvert
Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection
University of Birmingham|University of Tasmania|University of Birmingham|Merck (Germany)|University of Birmingham|University of Birmingham|NIHR Birmingham Biomedical Research Centre|University Hospitals Birmingham NHS Foundation Trust
patientreported outcomes pros used clinical trials provide evidence benefits risks interventions patient perspective inform regulatory decisions health policy collection pros routine practice facilitate monitoring patient symptoms identification unmet needs prioritisation andor tailoring treatment needs individual patients inform valuebased healthcare initiatives however respondent burden needs carefully considered addressed avoid high rates missing data poor reporting pro results may lead poor quality data regulatory decision making andor clinical care