J. Nicholas Dionne?Odom|Wendy Demark?Wahnefried|Richard A. Taylor|Maria Pisu|Andrés Azuero|Aras Acemgil|Michelle Y. Martin|Meka Astin|Deborah Ejem|Elizabeth Kvale|Karen Heaton|Maria Pisu|Edward E. Partridge|Marie Bakitas
The self-care practices of family caregivers of persons with poor prognosis cancer: differences by varying levels of caregiver well-being and preparedness
University of Alabama at Birmingham|University of Alabama at Birmingham|University of Alabama at Birmingham|University of Tennessee Health Science Center|University of Alabama at Birmingham|University of Alabama at Birmingham|University of Alabama at Birmingham
little known impact family caregiving adults poor prognosis cancer caregivers individual selfcare practices explored differences caregivers discrete selfcare practices associated varying levels caregiver wellbeing preparedness decisionmaking selfefficacy crosssectional survey within eight communitybased southeastern us cancer centers conducted family caregivers medicare beneficiaries 65 years pancreatic lung brain ovarian head neck hematologic stage iv cancer completed measures individual selfcare practices health responsibility physical activity nutrition spiritual growth interpersonal relations stress management sleep wellbeing anxiety depression healthrelated quality life hrqol preparedness decisionmaking selfefficacy caregivers n 294 averaged 66 years mostly female 728 white 912 protestant 762 retired 544 patients spousepartner 602 approximately half ruraldwellers 469 incomes 50000 538 provided support 67 daysweek 71 1 year 68 nearly quarter 23 reported high depression 34 reported borderline high anxiety low engagement selfcare practices associated worse caregiver anxiety depression mental hrqol p values 05 caregivers lower health responsibility spiritual growth interpersonal relation stress management scores lower preparedness decisionmaking selfefficacy significant proportion caregivers simultaneously report low engagement forms selfcare practices high depression anxiety low hrqol mental health scores caregiver wellbeing preparedness decisionmaking selfefficacy might optimized interventions targeted enhancing health responsibility stress management interpersonal relationships spiritual growth selfcare practices