Sultan Ayaz-Alkaya, Fatma Ozlem Ozturk
Health Literacy Levels of Women and Related Factors in Turkey
The journal of nursing research : JNR
previous studies quality life qol mood behavior muscular dystrophy focus caregiver perceptions crosssectional study aims determine prevalence clinically significant mood behavior problems patient caregiver report assess relationship moodbehavior qol fortyone patients dystrophinopathies duchenne muscular dystrophy dmd becker muscular dystrophy bmd recruited university virginia neuromuscular clinic patient caregiver dyad completed questionnaires including behavior assessment system children 2nd edition basc2 pediatric quality life inventory dmd pedsqldmd childrens depression inventory 2nd edition screen child anxiety related disorders persons dystrophinopathies rated behavior adaptive skills similarly general population sixtyfour percent parent assessments rated clinically significant problems basc2 worse basc2 scores self parent assessments correlated lower worse scores worry communication pedsql domains patientreported qol scores higher parentreported scores domain except worry individuals dmdbmd rate adaptive skills behavioral symptoms externalizing internalizing problems school problems positively parentscaregivers obtaining selfreport data worthwhile endeavor add value intervention planning ultimate goal optimizing qol