Antoine Boivin|Audrey L’Espérance|François?Pierre Gauvin|Vincent Dumez|Ann C. Macaulay|Pascale Lehoux|Julia Abelson
Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
Université de Montréal|McMaster University|Université de Montréal|McGill University|Université de Montréal|McMaster University
abstract background patient public engagement growing evaluative efforts remain limited reviews looking evaluation tools patient engagement individual decision making exist similar articles research health systems published objective systematically review appraise evaluation tools patient public engagement research health system decision making methods searched literature published january 1980 february 2016 electronic databases ovid medline embase cochrane database systematic reviews cinahl psycinfo consulted well grey literature obtained google subjectmatter experts social media engagement organization websites two independent reviewers appraised evaluation tools based 4 assessment criteria scientific rigour patient public perspective comprehensiveness usability results total 10 663 unique references identified 27 included tools developed last decade designed support improvement engagement activities 11 tools explicitly based literature review 7 tested reliability patients members public involved designing 56 tools mainly piloting stage 185 tools designed report evaluation results patients public conclusion growing number evaluation tools available support patient public engagement research health system decision making however scientific rigour evaluation tools developed could improved well level patient public engagement design reporting