Tessnim R. Ahmad|Marcus L Turner|Charis Hoppe|Alan W Kong|Jackson Barnett|Gurbani Kaur|Neel D Pasricha|Maanasa Indaram
Parental Keratoconus Literacy: A Socioeconomic Perspective
University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco|University of California, San Francisco
assess impact parental socioeconomic status keratoconus literacy pediatric eye rubbing keratoconus severityin mixedmethods study pediatric keratoconus patients age 18 years retrospectively identified sociodemographic clinical characteristics extracted electronic medical record emr telephone surveys subsequently conducted assess parental keratoconus literacy receipt counseling keratoconus prevention eye rubbing household socioeconomic factors available emr parents reporting poor keratoconus literacy probed via semistructured interview explore barriers understandingfortyeight patients met inclusion criteria 22 46 reached telephone patients insured medicaid 73 current eye rubbers 82 parents reported good excellent keratoconus literacy 32 time diagnosis 18 parents highschool education limited english proficiency lower income level medicaid insurance tended lower keratoconus literacy though statistically significant parental keratoconus literacy correlated disease severity highschool education limited english proficiency lower income level medicaid insurance correlated steeper keratometry readings statistically significant highschool education indepth interviews revealed parents felt unconfident eye health general perceived personal responsibility learning morethis first study exploring keratoconus literacy socioeconomic perspective demonstrating lower literacy among socioeconomically marginalized parents tendency toward severe disease children