Brad Zebrack|Janet E. Donohue|James G. Gurney|Mark A. Chesler|Smita Bhatia|Wendy Landier
Psychometric evaluation of the impact of cancer (IOC-CS) scale for young adult survivors of childhood cancer
University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|University of Michigan–Ann Arbor|City Of Hope National Medical Center|City Of Hope National Medical Center
psychosocial outcomes derived standardized diseasespecific measures often used pediatric oncology however reliability validity utility instruments adult survivors childhood cancer yet establishedto develop evaluate new instrument measures aspects longterm survivorship measured existing toolsa new candidate instrumentthe impact cancer childhood cancer survivors ioccswas administered childhood cancer survivors aged 1839 21 years age younger diagnosed cancer psychometric properties newly derived scales assessedfactor analyses items derived eight new specific subscales life challenges bodyhealth talking parents personal growth thinkingmemory problems health literacy socializing financial problems internal consistency measurements subscales ranged 070 086 expected associations within among ioccs subscales standardized measures healthrelated quality life hrqol observed unexpected findingspsychometric analyses indicated initial version ioccs measures distinct relevant constructs young adult survivors childhood cancer future work necessary confirm responsiveness validate instrument multiple representative samples