Lauren M Ostrowski, Elizabeth R Spencer, Lynne M Bird, Ronald Thibert, Robert W Komorowski, Mark A Kramer, Catherine J Chu
Delta power robustly predicts cognitive function in Angelman syndrome
Annals of clinical and translational neurology
adapt content functionalities brain health pro webbased multidomain program designed increase dementia literacy context needs users providers community organisations across qubec canada five consecutive qualitative cocreation focus group sessions 3090 min duration exploring potential barriers facilitators usability accessibility comprehensibility participant recruitment retention virtual meetings 15member team based qubec ontario canada consisting 9 researchers including graduate student project coordinator representing occupational therapy sensory rehabilitation neuropsychology psychology health science research methods 3 informal caregivers older adults living cognitive decline 3 members federation quebec alzheimer societies session recordings summarised qualitative description thematic analysis synthesised recommendations included adjustments around diversity complexity presentation styles materials suggestions refining web interface measurement approaches influenced aspects participant recruitment retention efforts engagement content brain health pro cocreation dementia prevention research important involves collaboration researchers community support service providers persons lived experience care providers design implementation clinical studies approach helps ensure content presentation educational material relevant meaningful target population involved delivery leads greater understanding needs perspectives