Amanda Willis|Sian K Smith|Bettina Meiser|ML Ballinger|David Thomas|Mary Young
Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review
UNSW Sydney|UNSW Sydney|UNSW Sydney|Garvan Institute of Medical Research|The Kinghorn Cancer Centre|Garvan Institute of Medical Research|The Kinghorn Cancer Centre|Peter MacCallum Cancer Centre
evidence suggests significant proportion individuals referred cancer genetic counselling gc attend thus may engaged adequate cancer risk management aimed review literature better understand barriers accessing gc may overcome conducted systematic literature search articles examining factors influencing cancer gc uptake well motivators barriers gc attendance factors categorised sociodemographic psychosocial clinical literature search identified 1413 citations 35 met inclusion criteria gc uptake ranged 19 88 exceptions education level socioeconomic status cancerspecific distress personal cancer diagnosis actual perceived risk cancer support lacking sociodemographic clinical psychosocial factors predictors gc uptake cost logistical barriers emotional concerns family concerns low perceived personal relevance reported important considerations declining gc conclude poor understanding gc lack decision support among referred gc research ways providing education support referred individuals important scope availability gc genetic testing broaden