Tommy Carlsson|Gunnar Bergman|Anna-Malin Karlsson|Elisabet Mattsson
Content and Quality of Information Websites About Congenital Heart Defects Following a Prenatal Diagnosis
Uppsala University|Karolinska Institutet|Uppsala University|Uppsala University
pregnant women partners use internet search information following prenatal diagnosis congenital heart defectour aim explore central subjects content assess accessibility reliability usability quality written information publicly available information websites congenital heart defects following prenatal diagnosisfollowing searches bing google included websites containing patient information english hits ranged 34000067500000 first 50 hits search screened inclusion n600 hits 393 236600 irrelevant total 67 websites included 37 2567 affiliated independent information websites 25 1767 charityprivate organizations 25 1767 hospitalsclinics 13 867 affiliations majority websites 76 5167 could attributed author manifest content analysis performed explore central subjects content discern instrument used assess quality information lida tool used assess accessibility usability reliability included websitesthe content majority websites included care treatment children congenital heart defects 88 5967 causes congenital heart defects 88 5967 symptoms congenital heart defects 85 5767 prevalence congenital heart defects 81 5467 potential complications congenital heart defects 75 5067 prenatal diagnosticsscreening methods 72 4867 specific congenital heart defects 72 4867 whereas less 10 included information termination pregnancy 6 467 care pregnancy 5 367 information specifically directed partners 1 167 mean total discern score 279 sd 97 range 1653 according instrument majority websites categorized poor regarding information effects treatment 88 5967 support shared decision making 85 5767 achievement aims 84 5667 explicit aims 82 5567 risks treatment 82 5567 treatment choices affect overall quality life 76 5167 areas uncertainty 76 5167 mean total lida score 923 sd 131 range 61127 according tool majority websites categorized good regard registration 97 6567 browser test 75 5067 whereas majority categorized poor regard currency 87 5867 content production 84 5667 engagability 75 5067difficulties finding relevant information sources using web search engines quality deficits websites incentive health professionals take active part providing adequate reliable information online congenital heart defects