Celeste Petrusevski, MacDermid Joy, Michael Wilson, Julie Richardson
"You can because you do and you do, because you can": Using interpretative description to examine what it means to be a physically literate adult living with multiple chronic conditions
PloS one
conceptually study aimed 1 identify challenges drivers encountered englands electronic palliative care coordination system epaccs projects context challenges drivers projects data sharing individual care also referred health information exchange hie 2 organise comprehensive yet parsimonious framework study also strong applied goal derive specific nontrivial recommendations advancing data sharing projects particularly ones early stages development implementation primary data comprised 40 indepth interviews 44 healthcare professionals patients carers project team members decision makers cambridgeshire uk secondary data extracted four preexisting literature reviews health information exchange health information technology implementation covering 135 studies thematic framework analysis underpinned pluralist coding main analytical approaches used reduced initial set 1800 parameters 500 challenges 300 drivers implementing epaccs data sharing projects less quarter 800 parameters associated primarily solution challenges drivers condensed actionguiding strategyinforming framework nine types pure challenges four types pure drivers nine types oppositional ambivalent forces pure challenges draw parallels patient data sharing broad complex domains sociotechnical social practice pure drivers differ internal external solution project team thus level control project team oppositional forces comprise pairs challenges drivers driver factor serving resolve counteract challenge ambivalent forces factors perceived simultaneously challenge driver depending context goals perspective framework distinctive emphasis 1 form challenges drivers 2 ambivalence ambiguity persistent tensions fundamental forces field innovation implementation 3 parallels draws variety nonit nonhealth domains practice source fruitful learning teams working data sharing projects need prioritise shaping social interactions structural contextual parameters midst tools implemented high number ambivalent forces speaks vital importance data sharing projects skills eliciting stakeholders assumptions managing conflict navigating multiple needs interests worldviews