Imelda Coyne|Dónal P O’Mathúna|Faith Gibson|Linda Shields|Edith Leclercq|Greg Sheaf
Interventions for promoting participation in shared decision-making for children with cancer
Trinity College Dublin|Dublin City University|London South Bank University|Charles Sturt University|Academic Medical Center|Emma Kinderziekenhuis|Trinity College Dublin
background update cochrane systematic review shared decisionmaking smd making published 2013 childrens rights views heard matters affect lives well established since publication un convention treaty 1989 children cancer generally prefer involved decisionmaking consider important opportunity take part decisionmaking concerning health care even endoflife decisions considerable support involving children healthcare decisionmaking level commensurate experience age abilities thus healthcare professionals parents need know involve children decisionmaking interventions effective promoting sdm children cancer objectives examine effects sdm interventions process sdm children cancer aged four 18 years search methods searched following sources review cochrane central register controlled studies central cochrane library 2016 issue 1 pubmed nlm 1946 february 2016 embase ovid 1974 february 2016 cinahl ebsco 1982 february 2016 eric proquest 1966 february 2016 psycinfo ebsco 1806 february 2016 biosis thomson reuters 1980 december 2009 subscription ceased date proquest dissertations theses 1637 february 2016 sociological abstracts proquest 1952 february 2016 addition searched reference lists relevant articles review articles following conference proceedings 2005 including 2015 american academy communication healthcare aach european society medical oncology esmo european cancer organisation ecco european association communication healthcare international conference communication healthcare icch international shared decision making conference isdm annual conference international society paediatric oncology siop annual scientific meeting society medical decision making smdm scanned isrctn international standard randomised controlled trial number register national institutes health nih register ongoing trials 29 february 2016 selection criteria update included randomised controlled trials rcts controlled clinical trials ccts sdm interventions children cancer aged four 18 years types decisions included treatment health care research participation decisions primary outcome sdm measured validated scale data collection analysis two review authors undertook searches three review authors independently assessed studies obtained contacted study authors additional information main results studies met inclusion criteria hence analysis could undertaken authors conclusions conclusions made effects interventions promote sdm children cancer aged four 18 years review highlighted dearth highquality quantitative research interventions promote participation sdm children cancer many potential reasons lack sdm intervention studies children attitudes towards childrens participation slowly changing society changes may take time translated adopted healthcare settings priority may developing interventions promote childrens participation communication interactions since informationsharing prerequisite sdm restricting review rcts limitation extending review nonrandomised studies nrs may produced evidence update included rcts ccts clearly research needed