María Luisa Gómez Taibo, Pilar Vieiro Iglesias, María del Salvador González Raposo, María Sotillo Méndez
An exploratory study of phonological awareness and working memory differences and literacy performance of people that use AAC
The Spanish journal of psychology
experience ethnically diverse parents children serious illness us health care system well studied listening families communities experiences could identify modifiable barriers quality pediatric serious illness care facilitate development potential improvements aim explore parents perspectives childrens health care serious illness somali hmong latinamerican communities minnesota conducted qualitative study focus groups individual interviews using immersioncrystallization data analysis communitybased participatory research approach twentysix parents children serious illness participated 8 somali 10 hmong 8 latinamerican parents desired 2way trusting respectful relationships medical staff three themes supported trust based parents experiences challenging supportive health care 1 informed understanding allows parents understand prepared childs medical care 2 compassionate interactions staff allow parents feel children cared 3 respected parental advocacy allows parents feel wisdom heard effective communication 1 key improving understanding expressing compassion partnering parents including quality medical interpretation lowenglish proficient parents parents children serious illness somali hmong latinamerican communities shared desire improved relationships staff improved health care processes processes enhance communication support connection including individual systemlevel interventions driven community voices hold potential reducing health disparities pediatric serious illness