Erin E. Kent|Neeraj Arora|Julia H. Rowland|Keith M. Bellizzi|Laura P. Forsythe|Ann S. Hamilton|Ingrid Oakley?Girvan|Ellen Burke Beckjord|Noreen M. Aziz
Health information needs and health-related quality of life in a diverse population of long-term cancer survivors
National Coalition for Cancer Survivorship|National Institutes of Health|National Cancer Institute|National Institutes of Health|National Cancer Institute|National Coalition for Cancer Survivorship|National Institutes of Health|National Cancer Institute|University of Connecticut|National Coalition for Cancer Survivorship|National Institutes of Health|National Cancer Institute|University of Southern California|Cancer Prevention Institute of California|University of Pittsburgh|National Institute of Nursing Research|National Institutes of Health
investigate health information needs association healthrelated quality life hrqol diverse populationbased sample longterm cancer survivorswe analyzed health information needs 1197 cancer survivors 414 years postdiagnosis drawn two cancer registries california multivariable regression models used identify factors associated endorsement total number different categories needs relationship number needs hrqol effect modification confidence obtaining information examinedsurvivors reported high prevalence unmet information needs following categories side effects symptoms 758 tests treatment 715 health promotion 645 interpersonal emotional 602 insurance 390 sexual functioning fertility 346 survivors younger nonwhite receive wanted written treatment summary reported higher number needs number information needs inversely related mental wellbeing particularly low confidence obtaining information p005these patterns suggest disparities access important health information longterm survivors affect hrqolfindings suggest need tailored interventions equip survivors comprehensive health information bolster skills obtaining information