Charo Rodríguez, Vasiliki Rahimzadeh, Gillian Bartlett-Esquilant, Tamara Carver
Insights for Teaching During a Pandemic: Lessons From a Pre-COVID-19 International Synchronous Hybrid Learning Experience
Family medicine
past years online record access ora established secure patient portals various countries allowing patients access health data including clinical notes open notes previous research indicates ora mental health particularly among patients severe mental illness smi rarely offered little known expectations motivations patients smi reading clinicians share via ora aim study explore reasons patients smi consider reject ora whether sociodemographic characteristics may influence patient decisions ora offered randomly selected patients 3 university outpatient clinics brandenburg germany exclusively treat patients smi within framework mixed methods evaluation qualitative interviews conducted patients chose participate ora declined aiming explore underlying reasons decisions interviews transcribed analyzed using thematic analysis sociodemographic characteristics patients examined using descriptive statistics identify predictors acceptance rejection ora 103 included patients 58 n60 wished read clinical notes reasons varied ranging desire engage actively treatment critically monitoring using accessible data thirdparty purposes conversely 42 n43 chose use ora voicing concerns possibly harming trustful relationship clinicians well potential personal distress uncertainty arising reading notes practical barriers lack digital literacy suspected difficulttounderstand medical language also named contributing factors correlation analysis revealed majority patients depressive disorder desired read clinical notes p001 individuals psychotic disorders showed higher tendency decline ora p05 significant group differences observed patient groups characteristics adoption ora influenced wide range motivational factors patients also present similar variety reasons declining use results emphasize urgent need knowledge patient education regarding factors may hinder decision use ora including practical usage application possibilities concerns related data privacy research needed explore approaches adequately preparing individuals smi transition inherent interest active engagement ora german clinical trial register drks00030188 httpsdrksdesearchentrialdrks00030188