Mariana Roizen|Susana Rodríguez|Gabriela Bauer|Gabriela Medín|Silvina Bevilacqua|James W. Varni|Verónica Dussel
Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
Garrahan Hospital|Garrahan Hospital|Garrahan Hospital|Hospital General Universitario Gregorio Marañón|Garrahan Hospital|Texas A&M University|Dana-Farber Cancer Institute
validate argentinean spanish version pedsql 40 generic core scales argentinean children adolescents chronic conditions assess impact sociodemographic characteristics instruments comprehensibility acceptability reliability knowngroups convergent validity testedconsecutive sample 287 children chronic conditions 105 healthy children ages 218 parents chronically ill children 1 attending outpatient clinics 2 one following diagnoses stem cell transplant chronic obstructive pulmonary disease hivaids cancer end stage renal disease complex congenital cardiopathy patients adult proxies completed pedsql 40 overall health status assessment physicians asked rate degree health status impairmentthe pedsql 40 feasible 9 children 5 7 yearolds could complete instrument easy administer completed without minimal help children parents required brief administration time average 56 minutes people living poverty line andor low literacy needed help complete instrument cronbach alphas internal consistency values total subscale scores exceeded 070 selfreports children 8 yearsold parentreports children 5 years age reliability proxyreports 24 yearolds low improved school items excluded internal consistency 57 yearolds low alpha range 028076 construct validity good child selfreport parent proxyreport pedsql 40 scores moderately significantly correlated rho 039 p 00001 significantly correlated physicians assessment health impairment child selfreported overall health status pedsql 40 discriminated healthy chronically ill children 7272 6687 healthy ill children respectively p 001 different chronic health conditions children lower socioeconomic statusresults suggest argentinean spanish pedsql 40 suitable research purposes public health setting children 8 years old parents children 5 years old people low income low literacy need help complete instrument steps expand use argentinean spanish pedsql 40 include alternative approach scoring 24 yearolds understanding increase reliability 57 yearolds selfreport confirmation aspects validity