J C Bledsoe, R G Wiggins
Congruence of adolescents' self-concepts and parents' perceptions of adolescents' self-concepts
The Journal of psychology
development ehealth technologies teleconsultation exchange knowledge one core purposes european reference networks erns including ern euronmd rare neuromuscular diseases within erns clinical patient management system cpms webbased platform seeks boost active collaboration within across network implementing data sharing cpms possible discuss patient cases make patients data available registries databases secure way view cpms may considered sort temporary storage patients data effective tool data sharing facilitates specialists consultation since rare diseases rds require multidisciplinary skills specific outstanding clinical experience following european union eu recommendation promote use cpms platform among euronmd members twelvemonth pilot project set train 15 italian health care providers hcps paper report structure methods results teaching course showing tailored ernoriented training significantly enhance profitable use cpms throughout training course 45 professionals learned use many features cpms eventually opening 98 panels discussionamounting 82 total panels included euronmd since clinical genetic diagnostic therapeutic data patients securely stored within platform also highlight importance platform effective tool discuss share clinical cases order ease case solving data storing paper discuss similar course could help implementing use platform highlighting strengths weaknesses ehealth erns expected result creation map neuromuscular patients across europe might improved wider use cpms