Kathleen Doherty|Hoang Nguyen|Claire Eccleston|Laura Tierney|Ron Mason|Aidan Bindoff|Andrew Robinson|James C. Vickers|Fran McInerney
Measuring consumer access, appraisal and application of services and information for dementia (CAAASI-Dem): a key component of dementia literacy
University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania|University of Tasmania
abstract background ability locate navigate use dementia services information either oneself providing care others essential component dementia literacy despite dementia literacy understood inadequate many settings validated instrument exists measure elements describe development preliminary validation consumer access appraisal application services information dementia caaasidem tool methods items adapted existing health literacy tools guided discussion posts understanding dementia massive open online course udmooc following expert review respondent debriefing modified caaasidem administered udmooc participants online basis descriptive statistics interitem item total correlations qualitative feedback refined administered online second cohort udmooc participants exploratory factor analysis identified underlying factor structure items retained significant factor loadings one factor factor required least three items significant factor loadings internal consistency factors final model evaluated using cronbachs alpha coefficients results pool 70 initial items either 5point likert scale confident extremely confident strongly agree strongly disagree binary scale yes 65 items retained caaasidemv1 statistical qualitative analysis 1412 responses led 34 items removed 11 revised improve clarity 31 item caaasidemv2 tool subsequently administered 3146 participants one item removed due redundancy efa resulted removal additional 4 items determination five factor structure evaluation engagement readiness social supports specific dementia services practical aspects conclusions five factors 26 constituent items caaasidem align functional critical communicative aspects dementia health literacy perspective carer screening tool people living dementia carers caaasidem potentially provides means determine support needs may key component dementia literacy assessment toolbox