M-L-B Raymundo, L-D Ferreira, D-E Gomes-Freire, A-R Freire, R-O Silva, E-C Araújo, E-H Lucena, Y-W Cavalcanti
Association between socioeconomic factors and origin of hospital referrals among patients with oral cancer
Medicina oral, patologia oral y cirugia bucal
storage sharing analysis genomic data poses technical logistical challenges precipitated development cloudbased computing platforms designed facilitate collaboration maximize scientific utility data understand cloud platforms policies procedures implications different stakeholder groups summer 2021 reviewed publicly available documents n 94 sourced platform websites scientific literature lay media five nihfunded cloud platforms us research hub nhgri anvil nhlbi biodata catalyst nci genomic data commons kids first data resource center preexisting data sharing mechanism dbgap platform policies compared across seven categories data governance data submission data ingestion user authentication authorization data security data access auditing sanctions analysis finds similarities across platforms including reliance formal data ingestion process multiple tiers data access varying user authentication andor authorization requirements platform user data security measures auditing inappropriate data use platforms differ data tiers organized well specifics user authentication authorization across access tiers analysis maps elements data governance across emerging nihfunded cloud platforms provides key resource stakeholders seeking understand utilize data access analysis options across platforms surface aspects governance may require harmonization achieve desired interoperability