Kelly Hosking, Teresa De Santis, Emily Vintour-Cesar, Phillip Merrdi Wilson, Linda Bunn, George Garambaka Gurruwiwi, Shiraline Wurrawilya, Sarah Mariyalawuy Bukulatjpi, Sandra Nelson, Cheryl Ross, Kelly-Anne Stuart-Carter, Terese Ngurruwuthun, Amanda Dhagapan, Paula Binks, Richard Sullivan, Linda Ward, Phoebe Schroder, Jaclyn Tate-Baker, Joshua S Davis, Christine Connors, Jane Davies
"Putting the power back into community": A mixed methods evaluation of a chronic hepatitis B training course for the Aboriginal health workforce of Australia's Northern Territory
PloS one
supported selfmanagement improve clinical psychosocial outcomes people cancer considerations required implement selfmanagement support sms people living lowergrade glioma lggwho often complex support needsare known aimed identify understand implementation considerations lens normalisation process theory npt perspectives healthcare professionals hcp people lgg conducted semistructured interviews hcps support adults brain tumours n 25 12 different healthcare professions people lgg completed primary treatment n 28 male n 16 mean age 546 years mean time since diagnosis 87 years across united kingdom interviews transcribed inductive open coding conducted deductively mapping constructs npt first mapped hcp data integrated data people lgg explore alignment experiences perspectives generated supporting evidence four npt constructs related subconstructs namely coherence cognitive participation collective action reflexive monitoring data hcps people lgg clearly demonstrated effective sms constitutes collective activity key implementation considerations included ensuring awareness access support building strong hcpsupport recipient relationships careful inclusion close family friends identified pertinent challenges identifying support needs influenced extent lgg engage helpseeking resistance support eg technology literacy training hcps hcp cooperation study demonstrates collective nature provides insight individual roles within supported selfmanagement outline considerations operationalise sustain appraise implementation sms people lgg people brain tumours informal caregivers involved development information materials topic guides ensure accessibility pertinence also opportunities comment interview findings