Pablo F Nepomuceno, Jacy Perissinoto, Maria Wany L Strufaldi, Clara R B de Avila, Rosana F Puccini
School and language performance in children born with low birth weight
Jornal de pediatria
burden care high parents children special care needs mothers need supported home care reduce burden care study aimed determine effects providing digital educationsupported telehealth application mothers children tracheostomy receiving home care development complications hospital admission care burden knowledge level mothers onegroup quasiexperimental pretestposttest study study conducted mothers children tracheostomy pediatric pulmonology outpatient clinic university hospital n 37 digital educationsupported telehealth application provided mothers digitally assisted education intervention lasted 6 weeks data collected using child mother identification form complication development followup form hospital admission followup form caregiver burden scale cbs tracheostomy care knowledge evaluation questionnaire data collected three time points immediately 3 months education data analysis repeatedmeasures analysis variance shapirowilk friedmans cochrans q tests used study 51 mothers aged 31 40 years 56 children male 37 aged 3 years total 62 children aged 25 months received respiratory support home care tracheostomy mechanical ventilator significant difference mean number complications p 0286 number hospital admissions p 0079 pretest posttest followup measurements mean cbs score mothers decreased pretest 3608 1204 posttest 3327 958 followup 3276 1118 measurements however significant difference p 0058 mean tracheostomy care knowledge level posttest 1373 128 followup 1397 114 scores increased significantly compared pretest 1214 155 scores p 0001 digital educationsupported telehealth application provided mothers reduced care burden increased knowledge level change number complications hospital admissions digital educationsupported telehealth intervention applied parents children requiring special care effective easytoaccess nursing intervention reducing burden care