J. Nicholas Dionne?Odom|Stephanie Ann Hooker|David B. Bekelman|Deborah Ejem|Gwen McGhan|Lisa Kitko|Anna Strömberg|Rachel Wells|Meka Astin|Zehra Gök Metin|Gisella Mancarella|Salpy V. Pamboukian|Lorraine S. Evangelista|Harleah G. Buck|Marie Bakitas
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review
University of Alabama at Birmingham|University of Colorado Denver|VA Eastern Colorado Health Care System|University of Alabama at Birmingham|University of Alabama at Birmingham|Pennsylvania State University|Linköping University|University of Alabama at Birmingham|University of Alabama at Birmingham|Hacettepe University|University of Alabama at Birmingham|University of Alabama at Birmingham|University of California, Irvine|University of South Florida|University of Alabama at Birmingham
many 23 million individuals heart failure hf worldwide receive daily unpaid support family member friend although hf palliative care practice guidelines stipulate support provided family caregivers evidence base guide care population comprehensively assessed order appraise stateofthescience hf family caregiving recommend areas future research aims review summarize 1 caregivers influence patients 2 consequences hf caregivers 3 interventions directed hf caregivers reviewed literature december 2015 pubmed cinahl using search terms heart failure caregiver inclusion criteria dictated studies report original research hf family caregiving articles focused children instrument development aggregated hf illnesses excluded identified 120 studies representing 5700 caregivers research population indicates 1 caregiving situations vary widely equally wideranging tasks patients help facilitate health behaviors psychological health relationships quality life qol 2 caregivers numerous unmet needs fluctuate patients unpredictable medical status felt ignored formal healthcare system lead distress burden reduced qol 3 relatively interventions developed tested effectively support hf family caregivers provide recommendations progress science forward areas moves beyond descriptive work intervention development clinical trials testing