John S. Luque|Gwendolyn P. Quinn|Francisco A. Montel-Ishino|Mariana Arévalo|Shalanda A. Bynum|Shalewa Noel?Thomas|Kristen J. Wells|Clement K. Gwede|Cathy D. Meade
Formative Research on Perceptions of Biobanking: What Community Members Think
Georgia Southern University|Moffitt Cancer Center|Moffitt Cancer Center|Moffitt Cancer Center|Moffitt Cancer Center|Moffitt Cancer Center|University of South Florida|Moffitt Cancer Center|Moffitt Cancer Center
preparing healthy community members timely communications prior engaging request donate biospecimens promises improve experience biobanking participation end qualitative study conducted assess community member knowledge attitudes beliefs informational needs cancerrelated biospecimen collection large metropolitan area southwest florida study utilized purposive sampling techniques recruit total 95 participants participate 12 focus groups segmented raceethnicity language preference mixed race african american spanish speaking age 1829 3054 55 older focus group interviews analyzed using content analysis identify emergent themes overall participants 30 years older groups favorable toward participating biobanking concerns addressed confidentiality consent issues contrast participants aged 1829 skeptical participants desire participate research seeks new cancer treatments outweighed mistrust moreover many cited potential scientific benefit future generations primary motivator finally groups therapeutic misconception expressed participants expressed willingness forego confidentiality health status exchange therapeutic benefit study contributes literature community perceptions benefits barriers biobanking adds development meaningful education communication priming tools advance understandings biobanking