Debra Parker Oliver|George Demiris|Karla Washington|Robin L. Kruse|Greg Petroski
Hospice Family Caregiver Involvement in Care Plan Meetings: A Mixed-Methods Randomized Controlled Trial
University of Missouri|Neurobehavioral Systems|University of Washington|University of Missouri|University of Missouri|University of Missouri
untrained family caregivers struggle complicated medical management regimens hospice patients intervention tested improve caregivers perception pain management patients painthe intervention tested 2group usual care vs intervention randomized controlled trial using parallel mixedmethods analysis 446 caregivers 3 midwestern hospice programs representing rural urban settingsweb conferencing telephones used connect caregivers hospice care team care plan meetingscaregivers perceptions pain management primary outcome secondary outcomes included caregiver quality life patients pain anxiety video recordings field notes caregiver staff interviews provided qualitative datathe overall perception pain management changed participation hospice team meetings perceptions fatalism improved intervention participants intervention participants perceived patients pain better controlled control group intervention found feasible deliver rural areas caregivers anxiety patients pain correlated r 18 p 003 subanalysis indicated caregivers patients cancer may benefit intervention hospice caregivers qualitative analyses provided understanding caregivers perceptions pain cost facilitators barriers routine involvement family care plan meetings limitations conclusion hospice philosophy supportive caregiver involvement care planning technology makes feasible intervention needs modification become translational well additional measurement assess effectiveness caregiver education emotional support occur outside meeting strong leader facilitate meeting control efficiency finally intervention may benefit caregivers patients cancer others