Jennifer Aversano, Leigh M Boehmer, Alexander Spira
Improving Cancer Care Delivery: Learnings for Oncology Nurses and Patient Navigation From a National Quality Survey
Journal of the advanced practitioner in oncology
structured transition adolescents young adults chronic autoinflammatory autoimmune disorders pediatric adult health care system important date data time processes outcome resources required necessary components transition process associated costs lacking evaluation resource use costs prospective cohort study 58 adolescents chronic autoinflammatory autoimmune disorders key elements structured transition pathway including compilation summary patient history ii assessment patients diseaserelated knowledge needs iii required education counseling sessions iv transfer appointment patient current pediatric future adult rheumatologist fortynine 58 enrolled patients 845 completed transition pathway transferred adult care mean time decision start transition process final transfer consultation 315 147 days transfer consultations performed 49 patients including 10 patients jointly future adult rheumatologist consultations performed multidisciplinary team median three team members lasted 655 213 min cumulative cost consultation education sessions performed including transfer appointment 283 164 euro per patient addition cost coordinating transition process 573 154 euro structured transition pathway patients chronic autoinflammatory autoimmune disorders resource time consuming adequately funded