J. Patrick Woolley|Michelle L. McGowan|Harriet Teare|Victoria Coathup|Jennifer R. Fishman|Richard A. Settersten|Sigrid Sterckx|Jane Kaye|Eric T. Juengst
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
Manchester College|University of Oxford|Pennsylvania State University|University of Oxford|University of Oxford|McGill University|Oregon State University|Ghent University|University of Oxford|University of North Carolina at Chapel Hill
language participantdriven research crowdsourcing citizen science increasingly used encourage public become involved research ventures subjects scientists originally labels invoked volunteer research efforts propelled amateurs outside traditional research institutions aimed appealing looking democratic patientcentric lay alternatives professional science establishment mainstream translational biomedical research requires increasingly larger participant pools however corporate academic governmental research programs embracing populist rhetoric encourage wider public participationwe examine ethical social implications recruitment strategy begin surveying examples citizen science outside biomedicine paradigmatic aspirations democratizing rhetoric originally meant embody next discuss ways aspirations become articulated biomedical context view drawing multiple potentially conflicting meanings public engagement citizens also subjects science illustrate two uses public engagement rhetoric gain public support national biomedical research efforts posthoc use caredata project national health service england proactive uses precision medicine initiative united states white house examples serve basis normative analysis discussing potential ethical social ramifications rhetoric pay particular attention implications government strategies cultivate idea members public civic duty participate governmentsponsored research initiatives argue initiatives draw policy frameworks support normative analysis role citizenry conclude imperative make visible clear full spectrum meanings citizen science contexts used demands respect participation engagement governance