Stacey S. Cofield|Nina Thomas|Tuula Tyry|Robert J. Fox|Amber Salter
Shared Decision Making and Autonomy Among US Participants with Multiple Sclerosis in the NARCOMS Registry
University of Alabama at Birmingham|Dignity Health|St. Joseph's Hospital and Medical Center|Washington University in St. Louis|Cleveland Clinic|University of Alabama at Birmingham|Dignity Health|St. Joseph's Hospital and Medical Center|Washington University in St. Louis|Cleveland Clinic|University of Alabama at Birmingham|Dignity Health|St. Joseph's Hospital and Medical Center|Washington University in St. Louis|Cleveland Clinic|University of Alabama at Birmingham|Dignity Health|St. Joseph's Hospital and Medical Center|Washington University in St. Louis|Cleveland Clinic|University of Alabama at Birmingham|Dignity Health|St. Joseph's Hospital and Medical Center|Washington University in St. Louis|Cleveland Clinic
treatment decisions multiple sclerosis ms affected many factors made patient doctor new diseasemodifying therapies dmts emerging complexity surrounding treatment decisions increasing emphasizing importance understanding decisionmaking preferencesnorth american research committee multiple sclerosis narcoms registry participants completed fall 2014 update survey included control preferences scale cps cps consists five images showing different patientdoctor roles treatment decision making images collapsed three categories patientcentered shared physiciancentered decisionmaking preferences associations decisionmaking preferences demographic clinical factors evaluated using multivariable logistic regressionof 7009 participants 793 women 935 white mean sd age 576 103 years 567 reported history relapses patientcentered decision making commonly preferred participants 479 followed shared decision making sdm 428 sdm preference higher women taking dmts increased age disease duration p 05 patientcentered decisions common respondents taking dmt time survey preferred dmt history compared previously taken dmt p 0001 difference sdm preference current ms disease course adjusting diseaserelated factorsresponders reported commonly considering doctors opinion making treatment decision making decisions jointly doctor dmt use gender age associated decisionmaking preference