Meagan Rubel|Allison Werner?Lin|Frances K. Barg|Barbara A. Bernhardt
Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results
University of Pennsylvania|University of Pennsylvania|University of Pennsylvania|University of Pennsylvania
assess participants receiving abnormal prenatal genetic testing results seek information understand implications results 27 us female patients 12 male partners receiving positive prenatal microarray testing results completed semistructured phone interviews interviews documented participant experiences chromosomal microarray testing understanding emotional response receiving results factors affecting decisionmaking testing pregnancy termination psychosocial needs throughout testing process interview data analyzed using modified grounded theory approach absence certainty implications results understanding results shaped biomedical expert knowledge bek cultural expert knowledge cek dearth bek case receiving results uncertain significance participants rely cek including religiousspiritual beliefs gut instinct embodied knowledge social network informants cek powerful platform guide understanding prenatal genetic testing results utility culturally situated expert knowledge testing uncertainty emphasizes decisionmaking occurs within discourses beyond biomedical domain forms knowing may integrated clinical consideration efficacious patient assessment counseling