Michael Matthews, Clare McKeaveney, Helen Noble, Joanne Reid
Exploring the unmet needs and experiences of informal caregivers of patients with end-stage kidney disease (ESKD) receiving haemodialysis - a qualitative study
PloS one
mesothelioma incurable asbestosrelated cancer poor prognosis scant evidence mental health wellbeing impacts patients carers living illness study aimed investigate mesotheliomas impact mental health wellbeing scale mental health conditions patients informal carers mixedmethods design used crosssectional survey mesothelioma patients informal carers plus semistructured interviews patients carers survey used validated scales collecting data mental health aspects mesothelioma eq5d assess healthrelated qualityoflife hospital anxiety depression scale pcl5 assess posttraumatic stress posttraumatic growth inventory datasets integrated analysis 96 useable survey responses received clinical level depression reported 29 participants 3021 anxiety 48 50 posttraumatic distress disorder 32 3333 posttraumatic growth 34 3542 carers worse scores patients three main themes developed interviews 10 patients 11 carers prognosis support services social connections communication healthcare professionals delivering mesothelioma diagnosis require regular training communication skills plus updating current treatment options provide appropriate mix realism hope better signposting mental health support needed patients carers introduction posttraumatic growth mesothelioma literature novel recommend specialist nurses trained recognise understand foster posttraumatic growth