Nao Hagiwara|Lisa Berry?Bobovski|Carie Francis|Lauren Ramsey|Robert A. Chapman|Terrance L. Albrecht
Unexpected Findings in the Exploration of African American Underrepresentation in Biospecimen Collection and Biobanks
Virginia Commonwealth University|The Barbara Ann Karmanos Cancer Institute|Wayne State University|The Barbara Ann Karmanos Cancer Institute|Wayne State University|The Barbara Ann Karmanos Cancer Institute|Wayne State University|Henry Ford Health System|The Barbara Ann Karmanos Cancer Institute|Wayne State University
racialethnic minorities underrepresented current biobanking programs current study utilized communitybased participatory research identify motivating factors barriers affect older african americans willingness donate biospecimens standardized phone survey administered 78 african americans 55 years old older live metropolitan detroit area assess overall willingness donate biospecimens factors associated majority participants willing donate biospecimens along personal information medical research indicated donate biospecimens asked however african americans rarely asked participate biobanking programs furthermore african americans concerned research exploitation mistrusting medical researchers previously thought medical researchers even african americans concerned potential research exploitation mistrust medical researchers concerns mistrust translate actual unwillingness participate biobanking programs rather transparency medical research biobanking programs important predicting african americans willingness donate biospecimens medical research findings suggest underrepresentation african americans current biobanking programs may due willingnessunwillingness participate programs rather due failure medical researchers approach additionally researchers clinicians focus increasing transparency medical research biobanking programs rather changing african americans potential negative attitudes toward