Billie Bonevski|Madeleine Randell|Chris Paul|Kathy Chapman|Laura Twyman|Jamie Bryant|Irena Brozek|Clare Hughes
Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups
University of Newcastle Australia|University of Newcastle Australia|University of Newcastle Australia|Cancer Council New South Wales|University of Newcastle Australia|University of Newcastle Australia|Cancer Council New South Wales|Cancer Council New South Wales
study aims review literature regarding barriers sampling recruitment participation retention members socioeconomically disadvantaged groups health research strategies increasing amount health research conducted socially disadvantaged groups systematic review narrative synthesis conducted searches electronic databases medline psychinfo embase social science index via web knowledge cinhal conducted english language articles published may 2013 qualitative quantitative studies well literature reviews included articles included reported attempts increase disadvantaged group participation research barriers research disadvantaged groups groups interest described socially culturally financially disadvantaged compared majority society eligible articles categorised according five phases research 1 sampling 2 recruitment gaining consent 3 data collection measurement 4 intervention delivery uptake 5 retention attrition total 116 papers 115 studies met inclusion criteria 31 previous literature reviews included comprehensive summation major barriers working various disadvantaged groups provided along proposed strategies addressing identified types barriers studies strategies address barriers descriptive nature nine studies reported results randomised trials tackle challenges research socially disadvantaged groups increase representation health medical research researchers research institutions need acknowledge extended timeframes plan higher resourcing costs operate via community partnerships