Lesley Fallowfield|Ivonne Solis?Trapala|Rachel Starkings|Shirley May|Lucy Matthews|Diana Eccles|D. Gareth Evans|Clare Turnbull|Gillian Crawford|Valerie Jenkins
Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 &amp; BRCA2 testing
Brighton and Sussex Medical School|University of Sussex|Keele University|Brighton and Sussex Medical School|University of Sussex|Brighton and Sussex Medical School|University of Sussex|Brighton and Sussex Medical School|University of Sussex|University of Southampton|Manchester Academic Health Science Centre|University of Manchester|Institute of Cancer Research|University Hospital Southampton NHS Foundation Trust|Brighton and Sussex Medical School|University of Sussex
abstract background mainstreaming germline testing demands healthcare professionals good communication skills genetic testing counselling experience developed evaluated educational workshopstalking risk amp uncertainties testing genetics trusting contents included presentations exercises interview geneticist brca testing screening prevention implications filmed interactions surgeons genetic counsellor geneticists fictitious family proband brca2 pathogenic variant triplenegative breast cancer older sister brca2 heterozygous cousinnegative brca2 variant methods twentyone surgeons 5 oncologists 18 nurses 9 genetic counsellors participated knowledge 18 item mcq communication skills responses 6 questions proband relatives selfconfidence discussing 9 genetic testing issues assessed pre post workshop results knowledge scores improved significantly post workshop mean change 706 95 confidence interval ci 637774 p lt 0001 communication mean change 538 95 ci 437638 p lt 0001 selfconfidence p lt 0001 discussion healthcare professionals knowledge selfconfidence discussing risks uncertainties genetics often poor trusting workshops significantly enhanced attendees navigation communication difficulties encountered rolled widely