Alexandre Mansuê Ferreira Carneiro, Yan Corrêa Rodrigues, Maria Fani Dolabela, Luana Nepomuceno Godim Costa Lima, Ricardo José de Paula Souza Guimarães, Carl Kendall, Ligia Regina Franco Sansigolo Kerr, Karla Valéria Batista Lima
Social Experiences, Discrimination, and Violence among Men Who Have Sex with Men in a Northern Brazilian Capital
Healthcare (Basel, Switzerland)
purpose study twofold assess parents experiences perception participating parental intervention program preschool children rare diseases pipprds ii evaluate elements pipprds parents emphasized important improving health literacy related facilitating transition children kindergarten school mixed methods evaluation study conducted ten eleven months postintervention integrating online quantitative survey combined individual semistructured interviews twentytwo parents participated individual interviews 18 also responded online questionnaire survey parents participated study reported information conveyed program great value utility 88 reported significantly alleviated stress associated childs schoolstart 84 indicated improved schoolhome collaboration 84 reported encouraged establish contact school prior school commencement qualitative data five main themes emerged competence knowledge acquisition ii becoming prepared relaxed iii achieved realistic expectations iv enhanced communication skills v increased health literacy selfefficacy evaluative findings suggest invention program notably improved parents aptitude school interaction enhanced adaptions according childrens needs accommodations provided reassurance schoolhome collaboration parents also described increased selfconfidence selfefficacy managing school start children rds highly positive response participating pipprds may reflect merits programs content also underscore significant needs support transition school parents children rds comparable initiatives oriented towards enhancing health literacy empowering parents anticipated yield similarly favourable results argue intervention program amalgamate pertinent information group discourse workshops schoolrelated issues alongside opportunities parents meet parents similar situations