Richard J. Gralla|Patricia J. Hollen|Pavlos Msaouel|Beverly Vincent Davis|Judith Petersen
An Evidence-Based Determination of Issues Affecting Quality of Life and Patient-Reported Outcomes in Lung Cancer: Results of a Survey of 660 Patients
Jacobi Medical Center|University of Virginia|Jacobi Medical Center|Fred Hutch Cancer Center|University of Washington|University of Washington|Fred Hutch Cancer Center
identifying issues importance patients lung cancer critical individualizing care developing effective quality life instruments based evidence study conducted provide enhanced content validity measures assessing quality life patientreported outcomes proswe conducted anonymous crosssectional electronic webbased survey 660 lung cancer patients survey asked patients rank 20 quality life issues 5point scale ranging important important analysis obtained using key factors stage disease performance status genderthe survey completed 297 males 363 females median age 62 years top five rated issues quality life maintaining independence ability perform normal activities ability sleep fatigued issues importance ranked using two highest categories important important least 90 patients although symptoms important patients highly ranked issues concern instead global issues illustrating effect symptoms patient quality life maintaining independence performing normal activities ranked highestthis largest analysis evidencebased data determining content validity quality life pros indicated patients results provide greater confidence content lung cancer quality life measures appropriate addition survey clearly demonstrates pro measures evaluate symptoms fully responding patientexpressed needs