Vicki S. Freimuth|Sandra Crouse Quinn|Stephen B. Thomas|Galen E. Cole|Eric G. Zook|Ted Duncan
African Americans’ views on research and the Tuskegee Syphilis study
Centers for Disease Control and Prevention|University of North Carolina at Chapel Hill|Emory University|Centers for Disease Control and Prevention|Porter Novelli (United States)|Centers for Disease Control and Prevention
participation african americans clinical public health research essential however multitude reasons participation low many research studies article reviews literature substantiates barriers participation legacy past abuses human subjects research article reports results seven focus groups 60 african americans los angeles chicago washington dc atlanta winter 1997 order improve recruitment retention research focus group study examined knowledge attitudes toward medical research knowledge tuskegee syphilis study reactions home box office production miss evers boys fictionalized version tuskegee study premiered february 1997 study found accurate knowledge research limited lack understanding trust informed consent procedures problematic distrust researchers posed substantial barrier recruitment additionally study found general participants believed research important clearly distinguished types research would willing consider participating motivations