Hao Wei, Peilun Shi, Juzheng Miao, Mingqin Zhang, Guitao Bai, Jianing Qiu, Furui Liu, Wu Yuan
CauDR: A causality-inspired domain generalization framework for fundus-based diabetic retinopathy grading
Computers in biology and medicine
children advanced cancer families communication prognosis critical unfortunately data demonstrate prognostic communication occurs infrequently inconsistently across advancing illness prior developing intervention improve prognostic communication aimed 1 characterize parent oncologist perspectives best approaches prognostic communication 2 explore similarities differences parent oncologist perspectives children poorprognosis solid tumors parents oncologists followed prospectively 24 months death matched semistructured interviews conducted parents oncologists 07 days medical encounters timepoints disease progression relapse reflexive thematic analysis conducted describe parent oncologist impressions communication quality total 68 interviews conducted following serial disease reevaluation encounters involving 13 parents five oncologists nine main themes identified best approaches 1 speaking honesty clarity 2 leaving room hope 3 leaning longstanding relationship 4 personalizing language 5 empowering patient family 6 collaborating multidisciplinary team 7 providing anticipatory guidance 8 setting scene 9 creating therapeutic space parents oncologists generally agreed themes related helpful communication approaches parents explicitly described communication pitfalls parents oncologists described clear recommendations helpful communication strategies pitfalls avoid difficult prognostic disclosure future work integrate patient perspectives design testing intervention improve prognostic communication advanced childhood cancer