Antoinette Anazodo|Paula Laws|Shanna Logan|Carla Saunders|Joanne Travaglia|Brigitte Gerstl|Natalie Bradford|Richard J. Cohn|Mary Birdsall|Ronald D. Barr|Nao Suzuki|Seido Takae|Ricardo Mello Marinho|Shuo Xiao|Qionghua Chen|Nalini Mahajan|Madhuri Patil|Devika Gunasheela|Kristen Smith|Leonard S. Sender|Claudia de O. Melo|Teresa Almeida?Santos|Mahmoud Salama|Leslie Appiah|Irene Su|Sheila Lane|Teresa K. Woodruff|Allan Pacey|Richard A. Anderson|F. Shenfield|William Ledger|Elizabeth Sullivan
How can we improve oncofertility care for patients? A systematic scoping review of current international practice and models of care
Sydney Children's Hospital|Prince of Wales Hospital|UNSW Sydney|Sydney Children's Hospital|UNSW Sydney|Royal Hospital for Women|University of Technology Sydney|University of Technology Sydney|Sydney Children's Hospital|Prince of Wales Hospital|Queensland University of Technology|Sydney Children's Hospital|UNSW Sydney|McMaster University|St. Marianna University School of Medicine|St. Marianna University School of Medicine|Instituto Tropical de Medicina Reprodutiva|University of South Carolina|First Affiliated Hospital of Xiamen University|Mother Hospital|Bloom Fertility Centre|Yashoda Hospital|Northwestern University|Children's Hospital of Orange County|Hospitais da Universidade de Coimbra|Hospitais da Universidade de Coimbra|Northwestern University|National Water Research Center|The Ohio State University|The Ohio State University Comprehensive Cancer Center – Arthur G. James Cancer Hospital and Richard J. Solove Research Institute|Nationwide Children's Hospital|University of California, San Diego|Oxford University Hospitals NHS Trust|University of Oxford|Northwestern University|Jessop Hospital|University of Sheffield|MRC Centre for Reproductive Health|The Queen's Medical Research Institute|University College Hospital|University College London|UNSW Sydney|Royal Hospital for Women
fertility preservation fp important quality life issue cancer survivors reproductive age despite existence broad international guidelines delivery oncofertility care particularly amongst paediatric adolescent young adult patients remains challenge healthcare professionals hcps quality oncofertility care variable uptake utilization fp remains low available guidelines fall short providing adequate detail oncofertility models care moc allow realworld application guidelines hcpsthe aim study systematically review literature components oncofertility care defined patient clinician representatives identify barriers facilitators challenges improve implementation oncofertility servicesa systematic scoping review conducted oncofertility moc literature published english 2007 2016 relating 10 domains care identified consumer research communication oncofertility decision aids ageappropriate care referral pathways documentation training supportive care treatment reproductive care cancer treatment psychosocial support ethical practice oncofertility care wide range electronic databases cinahl embase psycinfo pubmed aeipt education research complete proquest voced searched order synthesize evidence around delivery oncofertility care related citations reference lists searched review undertaken following registration international prospective register systematic reviews prospero registration number crd42017055837 guidelines preferred reporting items systematic reviews metaanalyses prismaa total 846 potentially relevant studies identified removal duplicates titles abstracts screened single reviewer final 147 papers screened two reviewers ten papers established moc identified amongst included papers data extracted paper quality scores summarized oncofertility moc summary matrix results identified number themes improving moc domain included importance patients receiving communication higher quality different formats fertility risk fp options improving provision oncofertility care timely manner improving access ageappropriate care defining role scope practice hcps improving communication different hcps different forms decision aids found useful assisting patients understand fp options weigh choicesthis analysis identifies core components delivery oncofertility moc provision oncofertility services requires planning ensure services safe reliable referral pathways ageappropriate include medical psychological oncofertility care survivorship period order happen collaboration needs occur clinicians allied hcps executives within paediatric adult hospitals well fertility clinics across public private services training cancer noncancer hcps needed improve knowledge hcps quality care provided confidence hcps consultations