Ivo D Dinov, Scott Kamino, Bilal Bhakhrani, Nicolas Christou
Technology-enhanced Interactive Teaching of Marginal, Joint and Conditional Probabilities: The Special Case of Bivariate Normal Distribution
Teaching statistics
design appropriate consent procedures secondary use personal health data key concern current medical research germany concept data donation recently come focus defined legal entitlement research use personal medical data without prior consent combined easytoexercise right data subjects optout standardized online interviews 3013 individuals representative german online population conducted august 2022 determine attitude towards data donation medical research majority participants supported consentfree data donation regulation publicly funded 851 private medical research 664 major predictors positive attitude towards data donation included sufficient appreciation respective kind research ie public private ii reciprocity attitude patients benefit research duty support research iii sufficient trust data protection data control peoples attitude towards data donation medical research generally positive germany depends upon factors curbed legislation internal rules procedure worthy note designing data donation form optout regulation necessarily mean paradigm informedness abandoned rather process information provision must shifted towards creation basic knowledge general population risks benefits dataintensive medical research health data literacy