Diana J. Wilkie|Agatha M. Gallo|Yingwei Yao|Robert E. Molokie|Christine E. Stahl|Patricia E. Hershberger|Zhongsheng Zhao|Marie L. Suarez|Robert J. Labotka|Bonnye Johnson|Rigo Angulo|Verónica Angulo|Jesus Carrasco|David Shuey|Stephanie A. Pelligra|Edward Wang|Dennie T. Rogers|Alexis A. Thompson
Reproductive Health Choices for Young Adults With Sickle Cell Disease or Trait
background people sickle cell disease scd sickle cell trait sct may information genetic inheritance needed making informed reproductive health decisions choices webbased multimedia educational intervention provides information reproductive options consequences help scd sct identify implement informed parenting plan efficacy choices compared usual care must evaluated objective purpose compare immediate posttest effects choices versus attentioncontrol usual care intervention ebook scdsctrelated reproductive health knowledge intention behavior methods randomized controlled study recruited subjects scdsct clinics community settings online networks data collected sites convenient 234 subjects scd n 136 sct n 98 ages ranged 18 35 years 65 women 94 african american subjects completed measure sickle cell reproductive knowledge intention behavior immediately intervention results compared ebook group choices group significantly higher average knowledge scores probability reporting parenting plan avoid scd scd sct pretest scores controlled effects intention planned behavior significant choices group showed significant change intention planned behavior whereas ebook group show significant change intention planned behavior differed significantly discussion initial efficacy findings encouraging warrant planned booster sessions outcome followups determine sustained intervention efficacy reproductive health knowledge intention actual behavior persons scdsct