Chris I Wong, Maya Ilowite, Adam Yan, Riley M Mahan, Marie D Desrochers, Margaret Conway, Amy L Billett
Reducing ambulatory central line-associated bloodstream infections: A family-centered approach
Pediatric blood & cancer
health literacy current public health priority portugal participation wellinformed patients care shared decision making essential especially chronic aggressive debilitating pathologies recurrent metastatic rm head neck squamous cell carcinoma hnscc study aimed characterize rm hnscc patients caregivers information needs identified healthcare professionals hcps two online focus groups one medical doctors hcps involved treatment rm hnscc patients conducted using modified metaplan lean adapted pdca methodology discussions audio recorded full content analysis performed using atlasti qualitative data analysis software topics addressed diagnosis treatment quality life global evaluation general experts agreed essential information cautiously given according patients caregivers wishes consensual patients given necessary information adhere treatment two main barriers identified one barrier associated verbal communication due lack health literacy patients barrier regarded healthcare access also considered important remind patients daily social activities could maintain well providing sufficient social resources problemsolving training caregivers qualitative study highlights complexity rm hnscc patients care immediate availability psychologists psychiatrists implemented centers treat hnscc patients differences found physicians focus group hcps focus group addressed topics emphasize importance multidisciplinary holistic approach biomedical model integrated biopsychosocial model