Ruhann Botha, Danyca S Breedt, Dylan Barnard, Ian Couper
Lessons from innovation in medical education during the COVID-19 pandemic: student perspectives on distributed training
Rural and remote health
worldwide number people parkinsons disease pd predicted double years 2005 2030 chronic care management requires active collaboration knowledge exchange patients health care professionals hcps best possible health outcomes describe cocare ehealth services potential support realization cocare people pd pwp hcps study aimed explore cocare could operationalized pd care supported ehealth specifically study explores pwps hcps expectations desired ehealth functionalities achieve cocare principles participatory design used enable identification cocare needs design ideas series 4 halfday codesign workshops sample included 7 4 women pwp 9 4 women hcps including 4 neurologists 3 nurses 2 physiotherapists codesign process resulted functional prototype evaluated codesign participants last workshop data collected note cards produced participants first 3 workshops focus group discussions 3rd 4th workshops data analyzed using qualitative thematic analysis workshop series prototype demonstrated mini fair ongoing pd research evaluated using selfdeveloped questionnaire 37 respondents 31 pwp 14 women 6 informal caregivers 3 women descriptive statistics reported qualitative analysis data resulted 2 main themes first theme core ehealth functionalities expected values describes 6 desired ehealth functionalities supporting pd cocare pwp hcps 1 selftracking 2 previsit forms 3 graphical visualization 4 clinical decision support 5 selfcare recommendations 6 asynchronous communication second theme individual organizational constraints describes constraints need addressed succeed ehealth service cocare individual constraints include ehealth literacy acceptance organizational constraints include teamwork administrative workload majority questionnaire respondents 3137 84 perceived would benefit ehealth service similar demonstrated prototype prototype functionalities rated important important majority respondents ranging 86 97 per functionality study adds knowledge pd cocare could operationalized cocare implies shift episodic routinedriven care flexible care management driven mutual needs patients hcps supported active information exchange well automated information processing generate patientspecific advice research needed explore concept cocare chronic care management means selfcare health care rr210219611278