W H Batchelder, D M Riefer
Theoretical and empirical review of multinomial process tree modeling
Psychonomic bulletin & review
people parkinsonism older living care home frailty multimorbidity impaired capacity consent underrepresented research limiting generalisability aimed evaluate inclusive recruitment strategies one uk centre invited people parkinsonism participate crosssectional study postal invitations followed telephone reminders additional support facilitate participation personal consultees provided information views regarding research participation adults impaired capacity approaches evaluated using external data parkinsons real world impact assessment prism study clinical practice research datalink cprd sample cases uk primary care ii comparing recruited without intensive engagement approached 1032 eligible patients 542 53 consented 477 46 returned questionnaires gender ratio primeuk 65 male closely matched cprd 61 male unlike prism sample 46 mean age prime participants 759 sd 85 years compared 753 95 654 89 years cprd prism respectively intensive engagement enhanced recruitment women 133 95 ci 38 229 p 0005 care home residents 62 11 112 p 0004 patients diagnosed atypical parkinsonism 137 54 199 p 0001 higher frailty score mean score 02 01 02 p 0001 recruitment strategies resulted less biased representative sample greater inclusion older people complex parkinsonism