Juliane Kröplin, Leonie Maier, Jan-Hendrik Lenz, Bernd Romeike
Knowledge Transfer and Networking Upon Implementation of a Transdisciplinary Digital Health Curriculum in a Unique Digital Health Training Culture: Prospective Analysis
JMIR medical education
alzheimer disease degenerative neurological condition requires longterm care cost responsibilities often borne informal caregivers experience elevated risk negative physical psychological outcomes previously designed positive emotion regulation intervention shown improve wellbeing among dementia caregivers delivered oneonone videoconferencing lessons trained facilitator however format required significant resources terms logistics facilitator time broaden reach intervention aimed develop social augmentation selfguided electronic delivery life enhancing activities family caregivers sage leaf program iteration intervention selfguided webbased format enhanced opportunities social connection aim study gather feedback inform design social features sage leaf intervention absence facilitator goal selfguided sage leaf intervention integrate various social features eg discussion board automated support profiles maximize engagement among participants qualitative data collected 26 individuals 1 interviews participants completed previous version intervention via videoconferencing facilitator 2 focus groups dementia caregivers previously experienced intervention 3 focus groups alzheimer disease clinical care providers conducted qualitative thematic analysis identify social features would helpful could implemented way would best received caregivers interview focus group feedback indicated participants generally liked potential features suggested including discussion boards multimedia content informational support valuable suggestions optimal implementation example participants liked idea buddy system would matched another caregiver duration study however expressed concern differing expectations among caregivers possibility matched caregivers getting along participants also expressed interest giving caregivers access podcast skills would allow review additional content wished taken together discussions caregivers providers offered unique insights types social features may integrated sage leaf intervention well implementation suggestions improve acceptability features among caregivers insights allow us design social features intervention optimally engaging helpful caregivers