Patti L. Ephraim|Neil R. Powe|Hamid Rabb|Jessica M. Ameling|Priscilla Auguste|LaPricia Lewis-Boyér|Raquel C. Greer|Deidra C. Crews|Tanjala S. Purnell|Bernard G. Jaar|Nicole DePasquale|L. Ebony Boulware
The providing resources to enhance African American patients’ readiness to make decisions about kidney disease (PREPARED) study: protocol of a randomized controlled trial
Welch Foundation|San Francisco General Hospital|University of California, San Francisco|Johns Hopkins University|Welch Foundation|Welch Foundation|Welch Foundation|Welch Foundation|Welch Foundation|Welch Foundation|Welch Foundation|Welch Foundation|Johns Hopkins University
abstract background living related kidney transplantation lrt underutilized particularly among african americans effectiveness informational financial interventions enhance informed decisionmaking among african americans end stage renal disease esrd improve rates lrt unknown methodsdesign report protocol providing resources enhance african american patients readiness make decisions kidney disease prepared study twophase study utilizing qualitative quantitative research methods design test effectiveness informational focused shared decisionmaking financial interventions overcome barriers pursuit lrt among african american patients families study phase involved evidencebased development informational materials well financial intervention enhance african american patients families proficiency shared decisionmaking regarding lrt study phase 2 currently conducting randomized controlled trial patients newonset esrd receive 1 usual dialysis care nephrologists 2 informational intervention educational video handbook 3 informational intervention addition option participating live kidney donor financial assistance program primary outcome randomized controlled trial include patients selfreported rates consideration lrt including family discussions lrt patientphysician discussions lrt identification lrt donor discussion results prepared study provide needed evidence ways enhance decision pursue lrt among african american patients esrd trial registration clinicaltrialsgov nct01439516