Ashwini Lakshmanan|Katrina Kubicek|Roberta G. Williams|Marisela Robles|Douglas Vanderbilt|Christine B. Mirzaian|Philippe Friedlich|Michele D. Kipke
Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study
Children's Hospital of Los Angeles|University of Southern California|Children's Hospital of Los Angeles|Children's Hospital of Los Angeles|University of Southern California|Children's Hospital of Los Angeles|Children's Hospital of Los Angeles|University of Southern California|Children's Hospital of Los Angeles|University of Southern California|Children's Hospital of Los Angeles|University of Southern California|University of Southern California
limited information families experiences transition discharge neonatal intensive care unitopenended semistructured interviews conducted english spanish speaking families enrolled medicaid urban highrisk infant follow clinic safetynet center serves preterm highrisk term infants generated salient themes using inductivedeductive thematic analysistwentyone participants completed study infants median iqr birth weight 1750 1305 2641 grams 71 hispanic 10 black nonhispanic 62 reported living neighborhood 34th quartile economic hardship classified chronic disease per pediatric medical complexity algorithm 67 medical complexity conceptual model constructed analysis revealed major themes describing families challenges ideas support transition centered parentchild role parent selfefficacy challenges 1 comparison normal babies 2 caregiver mental health 3 need information ideas support transition included 1 support systems 2 interventions using mobile health technology 3 improved communication primary care provider 4 information regarding financial assistance programs specific subthemes differed frequency counts infants without medical complexityfamilies often compare preterm highrisk infant peers mothers feel great anxiety stress however families often found hope resilience peer support cited addition information needs interventions using mobile health technology transition financial systems could better support families discharge