Debra E. Irwin|Brian D. Stucky|David Thissen|Esi Morgan DeWitt|Jin Shei Lai|Karin Yeatts|James W. Varni|Darren A. DeWalt
Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
University of North Carolina at Chapel Hill|University of North Carolina at Chapel Hill|University of North Carolina at Chapel Hill|Cincinnati Children's Hospital Medical Center|Children's Hospital & Medical Center|Northwestern University|University of North Carolina at Chapel Hill|Texas A&M University|University of North Carolina at Chapel Hill
paper describes largescale administration patientreported outcomes measurement information system promis pediatric items evaluate measurement characteristicseach child completed one seven test forms containing items pool 293 promis items four legacy scales promis items covered six domains physical function emotional distress social role relationship fatigue pain asthmafrom january 2007 may 2008 4129 children aged 817 enrolled sample 51 female 55 aged 812 42 minority race 17 hispanic ethnicity approximately 35 children participating survey consulted clinician chronic illness diagnosis treatment within 6 months prior study enrollmentthe final promis pediatric item banks include physical function n 52 items emotional distress n 35 items social role relationships n 15 items fatigue n 34 items pain n 13 items asthma n 17 items initial calibration data provided diverse set children varying health states eg children variety common chronic illnesses racialethnic backgrounds