Elizabeth A. Pector
Views of Bereaved Multiple-birth Parents on Life Support Decisions, the Dying Process, and Discussions Surrounding Death
Spectrum Research (United States)
study assessed experiences bereaved parents multiples resuscitation lifesupport discussions death process conversations healthcare professionals deathin 71 bereaved parents multiples recruited internet support groups completed narrative email survey assessing many facets bereavement numeric data analyzed using simple quantitative analysis grounded theory approach used qualitative datamost decisions collaborative occasional directive comments decisions made crises occasionally parents initiated lifesupport discussions multidisciplinary meetings occurred 30 desired parents total 18 parents encountered criticism choices parents attended resuscitation found meaning holding dying children many desire privacy availability symptom management family clergy involvement photographs multiples together valued parents offered many suggestions compassionate death notification felt occur person parents present death respondents valued clear prompt discussion cause death clinician availability later review clinical events decisionsmultiplebirth parents choices resemble singleton parents end infants life