Jan Bardelle, Hanna Abady, Michael Paulussen, Peter Lampen-Eberle, Hermann Kalhoff, Antje Pizzulli, Kirn Parasher, Patrick Brzoska, Malik Aydin, Claudia Kiessling
Study protocol of a prospective, interventional non-randomised trial investigating the impact of asthma education on specific disease understanding, health literacy and therapy outcome in childhood
BMJ open
stroke among top contributors disability impact individuals cognition physical functioning mental health since covid19 pandemic several communitybased organizations started delivering stroke programs virtually however participants experiences programs remain understudied evidencebased guidelines inform optimize virtual stroke program development delivery lacking thus study aimed describe perspectives experiences individuals stroke participated virtual communitybased organization stroke programs including perceived access participation facilitators barriers suggestions improving programs qualitative descriptive design used gather participant experiences semistructured interviews audiorecorded interviews conducted zoom transcribed verbatim adult participants experienced stroke attended least one canadian virtual communitybased organization stroke program recruited data analyzed using inductive thematic analysis twelve participants 3269 years 223 years poststroke eight women four men participated study five themes identified 1 motives join virtual communitybased organization stroke programs including gaining peer connections knowledge information 2 perceived barriers accessing participating virtual communitybased organization stroke programs including technology inequities difficulties navigating technology inadequate facilitation 3 perceived facilitators accessing participating virtual communitybased organization stroke programs including remote access virtual platform features program leader characteristicsskills 4 unmet needs virtual communitybased organization stroke programs including inperson connection individualized support 5 suggestions preferences improving virtual communitybased organization stroke programs including program facilitation content format study findings highlight opportunities improve virtual communitybased organization stroke programs optimize participant experiences outcomes addressing barriers suggestions identified study may improve virtual communitybased organization stroke programs access quality