Rebecca Tsusaki, Daisy Mullassery, Padmavathy Ramaswamy
Development and implementation of sexual and gender minority curriculum for advanced practice nursing: A feasibility study
Journal of advanced nursing
importance advance care planning acp prepares patients families future health care decisions however needs adolescent oncology patients participation acp well studiedobjective examine efficacy familycentered acpdesign setting twogroup randomized controlled trial pediatric oncology programparticipants sixty adolescents aged 14 21 years cancer surrogates families enrolled study january 17 2011 march 29 2012intervention thirty dyads received 3to 60minute sessions 1 week apartintervention dyads completed 1 lyon familycentered acp survey 2 respecting choices interview 3 five wishescontrol subjects received standard care plus informationmain outcome measures statement treatment preferences decisional conflict scale score resultsthe mean age adolescents 16 years 36 60 male 30 50 white 26 43 black 4 7 asiandiagnoses follows leukemia 14 patients 47 brain tumor 8 27 solid tumor 6 20 lymphoma 2 7significantly increased congruence observed intervention dyads compared controls 4 6 diseasespecific scenarios example situation 2 treatment would extend life 2 3 months intervention dyads demonstrated higher congruence 0660 p 001vs control dyads 00636p70intervention adolescents 100 wanted families best time whereas fewer control adolescents 62 gave families leewayintervention adolescents significantly better informed endoflife decisions t293effect size 0961 95 ci 07421180p 007intervention families likely concur limiting treatments controlsan ethnic difference found one situationconclusions advance care planning enabled families understand honor adolescents wishesintervention dyads likely controls limit treatmentsunderserved african american families willing participate