Catarina Vales, Anna V Fisher
When Stronger Knowledge Slows You Down: Semantic Relatedness Predicts Children's Co-Activation of Related Items in a Visual Search Paradigm
Cognitive science
patient reported outcomes pros generally defined report status patients health condition comes directly patient without interpretation patients response clinician anyone else broader definition pro also includes information outcomes health care obtained directly patients without modification clinicians health care professionals following approach pros encompass subjective perceptions patients function feel relation health condition also treatment well concepts healthrelated quality life hrqol information functional status patient signs symptoms symptom burden pro measurement instruments proms mostly questionnaires inform patients feel pros proms yet found unconditional acceptance wide use field inborn errors metabolism review summarises importance usefulness pros research drug legislation clinical care informs quality standards development potential methodological shortfalls proms inclusion pros measured highquality wellselected proms clinical care drug legislation research helps identify unmet needs improve quality care define outcomes meaningful patients field iem open new methodological approaches definition core sets variables including pros systematically assessed specific metabolic conditions new collaborations pro experts psychologists facilitate systematic collection meaningful data