Ashley A. White|Aïssatou Bâ|Trevor D. Faith|Viswanathan Ramakrishnan|Clara E. Dismuke?Greer|Jim C. Oates|Edith M. Williams
The Care-coordination Approach to Learning Lupus Self-Management: a patient navigator intervention for systemic lupus inpatients
Medical University of South Carolina|Medical University of South Carolina|Medical University of South Carolina|Faculty of Public Health|Medical University of South Carolina|VA Palo Alto Health Care System|Ralph H. Johnson VA Medical Center|Medical University of South Carolina|Medical University of South Carolina
objective carecoordination approach learning lupus selfmanagement calls study designed improve sle disease selfmanagement study aims assess benefits intervention compared existing lupus care methods participants randomly assigned participate 12weekly phone sessions patient navigator included structured educational content care coordination patientcentred support services usual care control condition validated measures health literacy selfefficacy patient activation disease activity collected used least squares means linear mixedeffects regression models outcome variable assess changes outcome baseline postintervention estimate difference changes intervention control group results thirty participants enrolled 14 randomised treatment group perceived lupus selfefficacy significant increase mean score intervention group control group regard disease activity experimental group experienced slight decrease mean flare score previous 3 months whereas control group experienced slight increase finding reach statistical significance trends similar selfreported global disease activity none findings significant health literacy patient activation measure scores remained largely unchanged throughout study two groups conclusion findings suggest calls intervention may work improve aspects sle disease selfmanagement future research needed validate findings longterm trial registration number nct04400240