Trine Filges, Jens Dietrichson, Bjørn C A Viinholt, Nina T Dalgaard
Service learning for improving academic success in students in grade K to 12: A systematic review
Campbell systematic reviews
rare diseases rd extremely complex health conditions persons affected conditions cameroon often neglected society health systems inexistence policies programs cameroon exists program policy conceived address needs terms access quality health care timely reliable diagnosis treatments education etc consequence persons living rd plwrd families participate social life unique fate plwrd reveals principle social justice equity flawed cameroon however patients order survive society rely patients organizations po improve quality life qol advocate better consideration society aim paper highlight initiatives grassroot perspective like pos inform decisionmakers address needs plwrd families study associated systematic literature review semistructured interviews parents children suffering rd members po systematic literature review highlighted impact pos development research rds patient literacy patient empowerment advocacy semistructured interviews brought needs patients families findings one hand show cameroon plwrd face number challenges like incurability condition catastrophic medical expenses stigmatization marginalization etc though pos qol still remains poor hand pos empowered key actors research rds help decisionmakers better insight type rd exists across geographical area sociodemographic profile patients etc better management plwrd study suggests ministry public health create network existing rd pos adequately meet needs plwrd