H. Becker|D. Grigat|Subrata Ghosh|Gilaad Kaplan|Levinus A. Dieleman|Eytan Wine|Richard N. Fedorak|Ana Carolina Fernandes|Remo Panaccione|Herman W. Barkema
Living with Inflammatory Bowel Disease: A Crohn’s and Colitis Canada Survey
University of Calgary|University of Calgary|Alberta Health Services|University of Calgary|Alberta Health Services|University of Calgary|University of Calgary|University of Alberta|University of Calgary|University of Alberta|University of Calgary|University of Alberta|Crohn's and Colitis Canada|University of Calgary|University of Calgary
despite improvements therapies inflammatory bowel diseases ibds patient quality life continues significantly impactedto assess impact ibd patients families regard leisure relationships mental wellbeing financial security evaluate quality availability ibd informationan online survey advertised crohns colitis canada website gastroenterology clinics university alberta hospital edmonton alberta university calgary hospital calgary albertathe survey completed 281 ibd patients 32 family members among respondents ibd 64 reported significant major impact leisure activities 52 significant major impact interpersonal relationships 40 significant major impact financial security 28 significant major impact planning start family patient information needs emphasized understanding disease progression 84 extraintestinal symptoms 82 strong interest support systems health care insurance 70 alternative therapies 66 common source information patients gastroenterologist 70 however 70 patients preferred obtain information crohns colitis canada websitethe impact ibd interpersonal relationships leisure activities significant among ibd patients families understanding disease also alternative treatment options high interest currently discrepancy interest information topics availability respondents reported strong desire obtain information regarding disease progression especially extraintestinal symptoms