J. T. Jabbour|Chris Milross|Puma Sundaresan|Ardalan Ebrahimi|Lisa Beatty|Haryana M. Dhillon|Gary J. Morgan|Bruce Ashford|Muzib Abdul?Razak|Eva Wong|Michael Veness|Carsten E. Palme|Cate Froggatt|Ruben D. Cohen|Rafael Ekmejian|Jessica Tay|David Roshan|Jonathan R. Clark
Education and support needs in patients with head and neck cancer: A multi?institutional survey
University of Sydney|Chris O’Brien Lifehouse|University of Sydney|University of Sydney|Westmead Hospital|Liverpool Hospital|University of Sydney|Cooperative Trials Group for Neuro-Oncology|University of Sydney|Cooperative Trials Group for Neuro-Oncology|Westmead Hospital|Wollongong Hospital|Westmead Hospital|Westmead Hospital|University of Sydney|Westmead Hospital|Westmead Hospital|Chris O’Brien Lifehouse|Liverpool Hospital|UNSW Sydney|University of New England|UNSW Sydney|University of Sydney|Chris O’Brien Lifehouse|UNSW Sydney
background head neck cancer hnc encompasses diverse group tumors thus providing appropriate tailored information patients treatment challenge objective current study characterize experience unmet needs patients hnc regard information support provision methods 28question crosssectional survey completed patients treated hnc 1 4 institutions new south wales australia chris obrien lifehouse liverpool westmead wollongong hospitals consisted adapted kessler psychological distress scale questions assessing information quality quantity format results total 597 patients responded mean age patients 58 years range 2194 years 284 men 313 women 111 majority patients reported information concerning disease process 76 prognosis 67 treatment 77 sufficient approximately 50 reporting received little information regarding coping stress anxiety substantial percentage patients reported receiving minimal information concerning psychosexual health 56 availability patient support groups 56 majority patients preferred access multiple modes information delivery 72 preferred modality oneonone meetings health educator 37 followed internetbased written information 19 conclusions patients hnc diverse group complex educational support needs patients appear given information regarding survivorship topics psychological wellbeing patient support groups psychosexual health less frequently information concerning disease treatment verbal communication needs reinforced accessible wellconstructed written multimedia resources appropriate patients educational level cancer 201712319491957 2017 american cancer society