Kyle B. Brothers|Daniel R. Morrison|Ellen Wright Clayton
Two large?scale surveys on community attitudes toward an opt?out biobank
Vanderbilt University|Vanderbilt University Medical Center|Vanderbilt University|Vanderbilt University|Vanderbilt University Medical Center
abstract although us research regulations allow deidentified biorepositories developed without formal informed consent patients whose samples included unknown whether model wellreceived community members based early evidence biobank could successful patients object opportunity optout vanderbilt university developed biorepository named biovu follows model study reports findings two largescale surveys among communities important biorepository first populationbased phone survey nashville residents found approval biovu high 939 approval similar among population groups hypothetical biobank obtain form written permission much less well received second online survey vanderbilt university faculty staff found higher level support biovu 945 among faculty staff working throughout university survey employees least likely approve biovu employees prefer receive medical care vanderbilt university surveys demonstrate highest level approval genomic biobank ever reported literature even among groups traditionally cautious research high level approval may reflect increasing comfort genomic research time combined effect trust specific institution approval operating biobank compared approval hypothetical biobank 2011 wiley periodicals inc