Margaret R Ugalde, Danielle Guffey, Charles G Minard, Angelo P Giardino, Gwendolyn A Johnson
A Survey of School Nurse Emergency Preparedness 2014-2015
The Journal of school nursing : the official publication of the National Association of School Nurses
selfmanagement interventions may enhance healthrelated quality life hrqol epilepsy however several barriers often impair implementation real world digital interventions may help overcome barriers considering helpilepsy plus prototype developed prototype smartphonedelivered selfcare treatment program adults epilepsy 12week helpilepsy plus prototype evaluated randomized controlled feasibility trial waitinglist control wlc group outcome measurement baseline 12 weeks assessed adherence prototype intervention changes epilepsyrelated outcomes primary endpoint patient autonomy measured ease secondary endpoints included hrqol measured qolie31 health literacy measured hlq anxiety depression symptoms measured hads semistructured interviews conducted heterogeneous sample participants assess userfriendliness usefulness prototype program delivered neuroventis platform neuroventis bv overijse belgium certified medical device eumdd class eumdr grace period ninetytwo patients included 46 intervention group 46 wlc participants 63 5892 women median age 30 years pharmacoresistant epilepsy 61 5692 22 participants 1046 intervention group completed least half intervention sessions significant differences intervention group wlc observed although larger proportion patients intervention group meaningful improvements hrqol compared wlc 1946 versus 1146 difference significant p 0119 qualitative feedback showed participants would appreciate personalization adaptation content current epilepsy knowledge level interactive interface shorter text sections interaction reminders notifications digital interventions allow sufficient scope personalization interaction increase patient engagement enable benefits selfcare apps feedback loops allow participatory development tailored interventions study investigated effectiveness appbased selfhelp intervention study participants either randomly assigned group access app group received access app end study although larger proportion participants intervention group showed relevant improvement quality life difference two groups statistically significant less onefifth participants intervention group attended least half intervention sessions patient feedback showed patients required personalization interactive options