Stephen Bayley, Darge Wole Meshesha, Pauline Rose, Tassew Woldehanna, Louise Yorke, Paul Ramchandani
Ruptured school trajectories: understanding the impact of COVID-19 on school dropout, socio-emotional and academic learning using a longitudinal design
Longitudinal and life course studies : international journal
50 years since genetic counseling gc profession began systematic study gc communication skills patientreported outcomes actual sessions across multiple clinical specialties never conducted optimize gc quality improve efficiency care field must first able comprehensively measure gc skills determine skills critical achieving positive patient experiences outcomes study aims characterise gc communication skills using novel pragmatic measure link variations communication skills patientreported outcomes across clinical specialties patients diverse backgrounds usa communityengagement providerengagement approach crucial develop recommendations quality culturally informed gc care greatly needed improve gc practice mixed methods sequential explanatory design used collect analyze audiorecorded gc sessions cancer cardiac prenatalreproductive genetic indications previsit postvisit quantitative surveys capturing patient experiences outcomes postvisit qualitative interview data novel practical checklist measure gc communication skills coincidence analysis identify patterns gc skills consistent high scores patientreported measures twolevel multilevel models used evaluate gc communication skills sessionpatient characteristics predict patientreported outcomes four community advisory boards cabs genetic counselor advisory board inform study design analysis study approved single institutional review board university minnesota research poses greater minimal risk participants results study shared national international conferences communitybased dissemination guided studys cabs lay summary also disseminated participants