Amelia Fiske|Barbara Prainsack|Alena Buyx
Data Work: Meaning-Making in the Era of Data-Rich Medicine
Technical University of Munich|University of North Carolina at Chapel Hill|King's College London|University of Vienna|Technical University of Munich
era datarich medicine increasing number domains peoples lives datafied rendered usable health care purposes yet deriving insights clinical practice individual life choices deciding data information used purpose pose difficult challenges require tremendous time resources skill thus big data promises new clinical insights also generates newand heretofore largely unarticulatedforms work patients families health care providers alike building science studies medical informatics anselm strauss colleagues concept patient work subsequent elaborations articulation work article analyze forms work engendered need make data information actionable treatment decisions lives individual patients outline three areas data work characterize work supporting digital data practices work interpretation contextualization work inclusion interaction first step toward naming making visible forms work order adequately seen rewarded assessed future argue making data work visible also necessary ensure insights big diverse datasets applied meaningful equitable ways better health care