Annika Bärkås, Anna Kharko, Charlotte Blease, Åsa Cajander, Asbjørn Johansen Fagerlund, Isto Huvila, Monika Alise Johansen, Bridget Kane, Sari Kujala, Jonas Moll, Hanife Rexhepi, Isabella Scandurra, Bo Wang, Maria Hägglund
Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden
Journal of medical Internet research
caregivers need understand health status disabilities care recipient engage effective health management infographics tailored personal health data promising approach facilitating comprehension particularly individuals low health literacylimited english proficiency approaches may especially important dementia caregivers given high care burden guided health belief model dataframe theory sensemaking conducted iterative participatory design sessions hispanic family caregivers n 16 persons dementia created multiple prototype infographic designs display scores validated instruments topics caregiving burden overall health psychological distress retained refined designs participants judged easily comprehensible analysis focused identifying graphical elements contributed comprehensibility designs evaluating participants reactions designs successful infographics used intuitive scaling consistent caregivers perspective dementia inevitable decline participants reacted infographics describing selfmanagement actions would take address health issue hand tailored infographics supported caregivers comprehension health status served cues engaging selfmanagement presented context informational support facilitate selection appropriate next steps mitigate potential mental physical health consequences caregiving enable caregivers continue care relatives dementia less damage wellbeing