Megan Prictor|Harriet Teare|Jane Kaye
Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
University of Melbourne|University of Oxford|University of Melbourne|University of Oxford|University of Melbourne
participation biobanks tends favor certain groupswhite middleclass highlyeducatedoften exclusion others indigenous people sociallydisadvantaged culturally linguistically diverse barriers participation include age location cultural sensitivities around human tissue issues literacy language influence diversity samples found biobanks implications generalizability research findings biobanks able translated clinic dynamic consent digital decisionsupport tool could improve participants recruitment engagement biobanks time help overcome barriers participation however also risks may deepen digital divide favoring knowledge access digital technologies potential decrease participant engagement research applying dynamic consent approach biobanking researchers give particular attention adaptations improve participant inclusivity evaluate tool empirically focus equityrelevant outcome measures may help biobanks fulfill promise enabling translational research relevant