Lauren T Shone, Irina M Harris, Evan J Livesey
Automaticity and cognitive control in the learned predictiveness effect
Journal of experimental psychology. Animal learning and cognition
patients end stage kidney disease eskd receiving haemodialysis experience multiple symptoms present physical emotional challenges patients informal caregivers caregivers experience anxiety depression social isolation negatively impacting overall wellbeing resulting caregiver burden needs group caregivers largely neglected little emphasis placed supportive interventions might assist support caring role aim study explore unmet needs experiences caregivers patients eskd receiving haemodialysis determine components supportive intervention qualitative study using semistructured interviews n 24 informal caregivers interpretive qualitative framework employed generate rich understanding unmet needs experiences caregivers data analysed using thematic analysis interviews transcribed verbatim data management assisted nvivo version 11 twentyfour informal caregivers purposively recruited two haemodialysis settings within northern ireland three themes identified 1 negative impact distress anxiety isolation caregivers due caregiving responsibilities 2 inadequate information knowledge complexities renal care 3 benefits spiritual beliefs stress management peer support relieving caregiving burden caregivers patients eskd receiving haemodialysis increased risk physical psychological distress burden arising caregiving role unpredictable nature eskd haemodialysis treatment negatively impacts caregiver experience adds challenges role information needs caregivers always adequately met subsequently lack appropriate knowledge skills guidance assist caregiving role supportive interventions essential caregivers enhance capability deliver effective care improve quality life