Tyler E Smith, Wendy M Reinke, Keith C Herman, Francis Huang
Understanding family-school engagement across and within elementary- and middle-school contexts
School psychology (Washington, D.C.)
connecting2gether c2 platform web mobilebased informationsharing tool aims improve care children medical complexity families key feature c2 secure messaging enables parental caregivers pcs communicate childs care team members ctms timely manner objectives study 1 evaluate use secure messaging system 2 examine compare content messages email phone calls 3 explore pcs ctms perceptions experiences using secure messaging method communication substudy larger feasibility evaluation c2 platform pcs children medical complexity recruited tertiarylevel complex care program use c2 platform 6 months pcs could invite ctms involved childs care register platform messages extracted c2 phone email data extracted electronic medical records quantitative data use c2 analyzed using descriptive statistics messaging content codes iteratively developed review c2 messages phone email communication semistructured interviews completed pcs ctms communication interview data analyzed using thematic analysis total 36 pcs 66 ctms registered c2 platform total 1861 messages sent c2 pcs nurse practitioners sending median 30 74 messages respectively c2 messages 8545 12571471 responded within 24 hours email phone calls focused primarily clinical concerns medications whereas c2 messaging focused parent education proactive checkins nonmedical aspects childs life four themes emerged platform user interviews related c2 messaging 1 connection care team 2 efficient communication 3 clinical uses secure messaging 4 barriers use overall study provides valuable insight benefits secure messaging care children medical complexity secure messaging provided opportunity continued family teaching proactive checkins health care providers casual conversations family child life contributed pcs feeling improved sense connection childs health care team secure messaging beneficial additional communication method improve communication pcs care team reducing associated burden care coordination ultimately enhancing experience care delivery future directions include evaluation secure messaging integrated electronic medical records potential work well ctm workflow reduce redundancy allow new features secure messaging