Eufémia Jacob|Courtney Childress|Joana Duran
Barriers to care and quality of primary care services in children with sickle cell disease
Octapharma (United States)
aims study 1 identify barriers care children sickle cell disease 2 examine quality primary care services received children 3 examine relationship barriers care quality primary care services children sickle cell diseaseeffective management children sickle cell disease requires early access comprehensive range preventive screenings urgent care treatments vasoocclusive pain crisis ongoing prophylactic treatmentsa crosssectional survey parents children sickle cell disease conducted aprilseptember 2011parents children sickle cell disease completed barriers care questionnaire parents perceptions primary careparents children sickle cell disease n 38 reported health system barriers inability contact doctors clinics extended wait times inconvenient clinic hours barriers reported frequently among children concurrent sickle cell disease asthma compared children without concurrent asthma condition parents reported barriers least likely perceive care accessible comprehensive coordinatedminimizing healthcare barriers may improve quality primary care services received children sickle cell disease consequently prevent complications associated sickle cell diseasenurses care providers need identify healthcare barriers access coordination comprehensiveness overall quality primary care services may improved children sickle cell disease