Rachel Wynn|Katharine Adams|Rebecca Kowalski|Winnie G. Shivega|Raj M. Ratwani|Kristen Miller
The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials
MedStar Health|MedStar Health|MedStar Health|Georgetown University|MedStar Health|Georgetown University|MedStar Health|Georgetown University
precision medicine pm potential tailor healthcare individual patient using genetic information guide treatment choices however process complex difficult understand patients providers alike recent push healthcare community understand patient experience engage patients care important give patients opportunity learn pm performed systematic review identify previous work assessing quality patientfacing pm materials 2008 july 2018 ten studies identified used varying methods measures qualitative assessment conducted compare key elements studies including study design characteristics participant population measurements used assess pm materials understandability preference psychological reactions type pm materials assessed studies identified provide important groundwork highlighting consistent aspects design aid comprehension eight ten studies focused content organization genomic test results remaining two assessed educational tools two main design elements appeared across studies appropriately designed visual aids simplified language studies identified limited participant populations used primarily white well educated one study attempted oversample patient populations typically underrepresented type research systematic review evident breadth knowledge field limited scope work must done ensure patients engage care faced pm