Susan Creary|Ismahan Adan|Joseph Stanek|Sarah H. O’Brien|Deena J. Chisolm|Tanica Jeffries|Kristin Zajo|Elizabeth Varga
Sickle cell trait knowledge and health literacy in caregivers who receive in?person sickle cell trait education
Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital|Nationwide Children's Hospital
abstract background despite universal screening detects sickle cell trait sct infancy 16 americans sct know status increase sct status awareness effective education patients families needed objective study assess caregivers sct knowledge inperson sct education session methods trained educator provides inperson sct education caregivers referred infants sct nationwide childrens hospital august 2015 july 2016 primarily englishspeaking caregivers infants hemoglobin strait recruited completed health literacy assessment sct knowledge assessment sctka receiving education caregivers repeated sctka 6 months could contacted results thirtyeight 381 percent 113 caregivers high sctka scores 75 education 903 achieved high scores education caregivers low sctka scores education significantly lower health literacy p 0029 baseline sctka scores p 0003 compared higher scores education 6 months caregivers scores significantly higher p 0014 baseline 733 scored 75 conclusion results suggest caregivers baseline sct knowledge low improves inperson education may decline time caregivers achieve high sct knowledge education lower health literacy baseline knowledge future studies determine adapting inperson education caregivers health literacy knowledge levels results high sustained sct knowledge among caregivers individuals know sct status