?lyas Mirza|Amina Tareen|Leslie L. Davidson|At?f Rahman
Community management of intellectual disabilities in Pakistan: a mixed methods study
Rawalpindi Medical University|Human Development Research Foundation|Barnet Enfield and Haringey Mental Health Trust|Human Development Research Foundation|Columbia University|University of Liverpool
abstract background pakistan one highest reported rates childhood intellectual disabilities id world prevalence estimates vary 1911000 serious id 651000 mild id methods surveyed carers persons id n 100 using quantitative qualitative instruments conducted indepth interviews carers n 16 key primary health providers n 10 also carried focus groups n 7 data triangulated interpreted light peer reviewed literature results delay 292 95 ci 19 394 417 95 ci 234 601 years detection seeking care parental stress associated caring children high mean selfreporting questionnaire score 84 95 ci 680 991 home management consisted mainly physical containment stigma associated id contributed decreased opportunity children families participate community activities lack knowledge causation effective interventions id conclusions findings suggest significant delay detection id especially rural setting 70 population pakistan resides missed opportunity rehabilitation early formative years cause significant distress caregivers rarely receive valid information course prognosis remedial action take need develop feasible costeffective community level interventions integrated existing healthcare systems