Simone Oerlemans|Olga Husson|Floortje Mols|Philip Poortmans|Henk Roerdink|Laurien A. Daniëls|Carien L. Creutzberg|Lonneke V. van de Poll?Franse
Perceived information provision and satisfaction among lymphoma and multiple myeloma survivors—results from a Dutch population-based study
Eindhoven Cancer Registry|Eindhoven Cancer Registry|Eindhoven Cancer Registry|Instituut Verbeeten|Elisabeth-TweeSteden Ziekenhuis|Leiden University Medical Center|Leiden University Medical Center|Tilburg University
improve posttreatment care longterm lymphoma survivors netherlands survivorship clinics developed information provision important aspect survivorship care aim evaluate current perceived level satisfaction information received nonhodgkins lymphoma nhl hodgkins lymphoma hl multiple myeloma mm survivors identify associations sociodemographic clinical characteristics populationbased eindhoven cancer registry used select patients diagnosed nhl hl mm 1999 2009 total 1448 survivors received questionnaire 1135 responded 784 eortc qlqinfo25 used evaluate perceived level satisfaction information two thirds survivors satisfied amount received information hl survivors satisfied 74 least 25 survivors wanted information young age chemotherapy diagnosed recently using internet information comorbidities important factors associated higher perceived levels information provision although information provision satisfaction information seems relatively good lymphoma mm survivors one third expressed unmet needs furthermore variations subgroups observed good information provision known associated better quality life survivorship care plans could way achieve