Lakshmi N. Moorthy|Margaret G. E. Peterson|M Baratelli|Melanie Harrison|Karen Onel|Elizabeth Candell Chalom|Kathleen A. Haines|Philip J. Hashkes|Thomas J A Lehman
Multicenter validation of a new quality of life measure in pediatric lupus
abstract objective pediatric systemic lupus erythematosus sle chronic fluctuating disease significantly impacts quality life qol pediatric slespecific healthrelated qol hrqol scale objective develop validate new pediatric slespecific hrqol scale methods developed simple measure impact lupus erythematosus youngsters smiley based results qualitative research children sle parents smiley parallel child parent reports 5faces scale responses smiley comprises 4 domains effect self limitations social burden sle crosssectional study examined face content construct concurrent validity internal consistency testretest reliability childparent agreement smiley children 18 years age sle parents completed corresponding child parent smiley reports well qol physical function scales qualified physicians assessed sle activity damage severity results eightysix children sle 80 parents participated smiley found face content construct concurrent validity spearmans rank correlation r 04 testretest reliability intraclass correlation coefficient icc 09 internal consistency 09 moderate agreement found child parent smiley reports icc 07 r 05 p lt 0001 conclusion smiley brief easily understood valid reliable pediatric slespecific qol scale smiley assesses childrens selfperception qol impacted sle predict great utility clinical practice clinical trials outcomes research