Jean Mullins|Donna Z Bliss|Sharon J. Rolnick|Casey Arntson Henre|Jody M. Jackson
Barriers to Communication With a Healthcare Provider and Health Literacy About Incontinence Among Informal Caregivers of Individuals With Dementia
University of Minnesota|University of Minnesota|HealthPartners|HealthPartners|University of Minnesota|HealthPartners
purpose purpose study examine barriers communicating healthcare professionals health literacy incontinence among different types informal caregivers individuals alzheimer disease ad design descriptive secondary analysis subjects setting sample included 48 familyfriend adult caregivers individuals ad seventyfive percent female mean age 64 14 years mean sd caregivers spouses 44 daughters 31 extended family membersfriends 25 nearly half 48 caregivers racially ethnically diverse background 58 care recipients incontinence methods data collected via focus groups interviews written surveys verbal responses audiotaped transcribed analyzed themes caregiver type using content analysis results caregivers persons ad described rolerelated barriers improving health literacy incontinence management main themes barriers emerged type role emotive nature daughters experiential spouse caregivers system related husbands relational perceived outsider extended familyfriends conclusions nurse continence specialists important role raising health literacy incontinence management informal caregivers individual ad results inform development interventions tailored type caregiver recommended national health literacy initiatives aim improving outcomes incontinence care recipients