Divya Khanna, Priyanka Sharma, Atul Budukh, Rajesh Vishwakarma, Anand N Sharma, Sonali Bagal, Varsha Tripathi, Vijay Kumar Maurya, Pankaj Chaturvedi, Satyajit Pradhan
Rural-urban disparity in cancer burden and care: findings from an Indian cancer registry
BMC cancer
genomic personalized medicine becomes mainstream assessing understanding publics genetic literacy paramount genetic research drives innovation involves much public equally important assess impact genetic literacy designed survey assess genetic literacy three ways familiarity knowledge skills distributed two distinct samples 2050 members general population 2023 individuals currently enrolled largescale genetic research study compared data similar survey implemented 2013 results indicate familiarity basic genetic terms 2021 536 range 17 p 0001 knowledge genetic concepts 2021 906 566 correct p 0002 significantly higher compared 2013 familiarity 508 range 17 knowledge 872 545 correct currently enrolled genetic study also significantly familiar genetic terms 579 range 17 p 0001 knowledgeable genetic concepts 1057 661 correct p 0001 scored higher skills 357 595 correct p 0001 general population 536 range 17 906 566 correct 265 442 correct results suggest genetic literacy improving time room improvement conclude educational interventions needed ensure familiarity comprehension basic genetic concepts suggest exploration impact genetic research participation genetic literacy determine mechanisms potential interventions