James T. Rague|Soojin Kim|Josephine Hirsch|Theresa Meyer|Ilina Rosoklija|Jill E. Larson|Vineeta T. Swaroop|Robin Bowman|Diana K. Bowen|Earl Y. Cheng|Elisa J. Gordon|Daniel I. Chu|Tamara Isakova|Elizabeth B. Yerkes|David I. Chu
Assessment of Health Literacy and Self-reported Readiness for Transition to Adult Care Among Adolescents and Young Adults With Spina Bifida
Lurie Children's Hospital|University of British Columbia|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Lurie Children's Hospital|Northwestern University|University of Alabama at Birmingham|Northwestern University|Lurie Children's Hospital|Northwestern University
h3importanceh3 health literacy shown play important role transitions care adult populations low health literacy associated adverse health outcomes role health literacy transition pediatric adult care less well studied among adolescents young adults spina bifida high rates unsuccessful transition shown patient health literacy affects transition readiness remains unknown h3objectiveh3 determine whether health literacy associated transition readiness adolescents young adults spina bifida h3design setting participantsh3 crosssectional study involved collection patientreported questionnaires june 2019 march 2020 multidisciplinary spina bifida center single freestanding childrens hospital patient demographic clinical characteristics obtained medical record review patients aged 12 years older diagnosis spina bifida myelomeningocele nonmyelomeningocele whose primary language english spanish data analysis performed october 2020 march 2021 h3exposuresh3 health literacy assessed brief health literacy screening tool h3main outcomes measuresh3 primary outcome total transition readiness assessment questionnaire traq score normalized units sd nested multivariable linear regression models assessed association health literacy traq scores h3resultsh3 traq brief health literacy screening tool completed 200 individuals median range age 170 120310 years 104 female participants 520 patients younger 18 years 110 participants 550 white 136 participants 680 myelomeningocele 125 participants 625 mean sd traq score 33 11 sixtysix participants 330 reported inadequate health literacy 60 participants 300 reported marginal health literacy 74 participants 370 reported adequate health literacy univariable analysis health literacy age type spina bifida level education selfadministration vs completion questionnaires assistance ambulatory status urinary incontinence associated total traq score nested sequentially adjusted multivariable models higher health literacy remained significant stepwise independent variable associated higher traq score fully adjusted model adequate compared inadequate health literacy associated increase normalized traq score 049 sd 95 ci 019079 h3conclusions relevanceh3 patientreported transition readiness associated health literacy even adjustment education level demographic clinical factors developing implementing health literacysensitive care programs transition process may improve patient transition readiness