Ana-María Urpí-Fernández, Edurne Zabaleta-Del-Olmo, Joaquín Tomás-Sábado, Elena Tambo-Lizalde, Juan-Francisco Roldán-Merino
[Adapting and validating a questionnaire to measure the self-care practices in healthy child population residing in Spain]
Atencion primaria
rural populations consistently experience disproportionate burden cancer including higher incidence mortality rates compared urban populations factors thought contribute disparities include limited lack access care challenges care coordination cc hawaii many patients residing rural areas experience unique challenges cc require interisland travel cancer treatment focus group study explored specific challenges positive experiences impact cc rural hawaii cancer patients conducted two semistructured focus group interviews cancer patients receiving active treatment type cancer n 8 participants recruited rural areas hawaii specifically hawaii county kauai rural defined using ruralurban commuting area codes ruca rural 4 focus group discussions facilitated using openended questions explore patients experiences cc content analysis revealed 47 discussions related ccrelated challenges including access care 273 insurance 91 interisland travel 61 medical literacy 45 major themes discussions focused facilitators cc 303 including use electronic patient portal 121 teambased approach 91 family caregiver support 45 local clinic staff 45 findings indicate notable challenges rural patients experiences regarding cancer care coordination specific factors lack oncologist oncology services fragmented system lack local general medical providers contribute problems access care however also positive factors found help facilitators cc notability use electronic patient portal teambased approach family caregiver support local clinic staff findings highlight potential targets interventions improve cancer care delivery rural patients required