As the world celebrates World Sickle Cell Day on June 19 , awareness of the disease remains low among a large portion of the Tharu indigenous people in Nepal , though many have lost their lives to it .
19 uru willka kuti phaxsinx uraqpachanw Día mundial de la anemia falciforme ukax amtasi , indígena tharu Nepal markanx uka usux utjiwa , waljaniw uka usump jiwapxi .