He has been involved with the PKD Foundation as a volunteer for over 25 years, having served as co-chapter coordinator for 2 different chapters, as well as serving on the Friends Advisory Committee (now Volunteer Advisory Committee) and served on the PKD Foundation Board of Trustees from 1997-2007. He is currently the co-chair of the Tampa Walk for PKD, and captains the team, Ivan’s Investors for a PKD Cure, in honor/memory of his father, Ivan Saul, who was a fierce advocate for PKD Patients.