Her research focuses on family management of children’s complex chronic conditions. Currently, she leads two projects: The Transition to Adulthood Plans Study (TAPS), an ethnographic study involving youth, parents, teachers and primary care providers and TAPS II partnering with Support for Families, a community organization, to pilot-test an intervention developed to meet needs identified in the first study. Other collaborative projects with colleagues, students and mentees include studies related to transition home from the NICU, management of chronic conditions for Latinos, and family and community impacts for children and youth with special health care needs.