She is the Chief Executive Officer of the California Lyme Disease Association, which oversees 46 internet state-based groups, and serves on the professional advisory board of the national Lyme Disease Association, which represents 35 groups in 23 states. She is also a director and an officer of the International Lyme and Affiliated Diseases Society (ILADS) and a member of the Cochrane Consumer Network for Cochrane evidence-based reviews. She maintains a popular advocacy blog at www.lymepolicywonk.org and is a frequent contributor to the Lyme Times.