you wrote: list of other diseases conditions or injuries and their treatment: chronic ear infectons - pe tubes x2 adneoidectomy gtube for poor feeding/weight gain short stature (still monitoring) behavioral issues stooling/withholding issues diagnosis that has been suggested: failure to thrive adhd or possibble bipolar short stature current medical treatment: mirolax prevacid play therapy 1x per week weekly trips to cleveland clinic feeding clinic chronic sinusitis is present during cystic fibrosis but it is not the major manifestation of the condition. cystic fibrosis mainly manifests with lung infections gastro-intestinal disorders endocrine disorders etc. if your childâs medical problems are due to cystic fibrosis the sweat-test would be positive; since is not cystic fibrosis is not likely. you can performe the genetic testing it is probable that the defective gene wonât be idnetified.
my son was suspected of cf last year but a sweat test was normal. we are not sure though as we have recently heard you can still carry the gene and get it later as a kid and that he should have gene testing. he is small for age and we have had him to an ent and immunologist for this nose/throat clearing that is sometimes all day long. he did have a few sinus infections and tried many many meds to dry him up and shrink nasal passages but they did nothing. just had him there yesterday and once again lot's of thick clear junk in his nose per the dr. do you think we should bother getting tested?