most helpful answer i'm sorry you're going through this and that your health care team hasn't discussed the prognosis with you. i'm sorry you had an open heart surgery without having any corrective measures taken. i'd suggest you make an appointment as soon as possible with your surgeon to discuss exactly what they found in terms of your heart that made them decide not to proceed with the intended surgery. your surgeon should be able to give you details about your prognosis and whether or not you should be considering hospice care. most important your health care team needs to address your shortness of breath issue. if there's some way to help this they need to treat it. if it can't be treated they need to tell you that and/or provide you with some anti-anxiety medication. i don't know about you but i think shortness of breath is incredibly anxiety-provoking. you deserve to be treated for this. please take a trusted family member or friend with you to your appointment with the surgeon. he or she will hear things you may miss and your friend can take notes and ask questions you may not think of. plus you need a support system to help you get through whatever lies ahead. again i'm so sorry you're going through this and wish you all the best.
prognosis leaking aortic & mitral valves w/ pulmonary hypertension. open heart done; decision made of no action. 6 yrs ago received metal aortic valve. recent testing showed leaking mitral & aortic leaking & needed replacement. also pulmonary hypertension established. got reopened nothing done and closed back up. sob is awful but pulse ox is 97 or 98. prognosis - long term sort term?