One effort to incorporate the patient voice into early research and development (R&D) is the Patient Insights Database (PID). 
Patient Insights Database
One effort to incorporate the patient voice into early research and development (R&D) is the Patient Insights Database (PID).  Currently comprising 102 indications, the PID was developed to uncover trends in mixed methods research data, including direct patient interviews and evidence-based medicine. 
PID